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Non Hodgkin's Lymphoma- Watch & Wait Approach

Blood Cancers & Disorders | Last Active: Apr 13 11:51am | Replies (199)

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@colleenyoung

I'd like to bring @vonbaron36 into this discussion, who I believe is also on "watch and wait" for non-Hodgkin's lymphoma.

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Replies to "I'd like to bring @vonbaron36 into this discussion, who I believe is also on "watch and..."

Three and 1/2 years ago I had a large tumor on my neck and a small one by my groin, both cancerous.I had radiation on both. A pet scan showed no cancer. There was nothing to do but watch and wait to see if and where it would occur again. I knew my follicular lymphoma was incurable at the time. I did not want to just wait until it came back, and with no other options I decided to research other options on my own. I decided to try curcumin. Over three years later and two PET scans and a CT scan last month found no cancer. I know that it can go into remission on its own, but it makes me feel better doing something that might be helpful. Next PET scan next March.

@vonbaron36 That is great news.. God Bless.
I have heard others tell me that too. A friend of mine had radiation 7 yrs ago for follicular lymphoma and there is no evidence of the disease today. His enlarged gland was in his groin too..
People have said Vitamin C and Tumeric/Curcumin helped. I was taking alot of vitamins after I was first diagnosed. But they made me so nauseous. I stopped taking them all. My blood word has been good and knock on wood so have the CT scans. I go back in September for my next CT scan.

After radiation for follicular lymphoma four years go and having C T or P E T scans every year since, without any detectable sign of cancer I guess you could say I am on watch and wait. My next scan will be in March 2019. It is always a stressful time of year for me, wondering if there will be a recurrence.

I have been watching a small node in my groin for six months. In two weeks I will have a PET scan to see if it has grown or metastasized. Will let you know the results.