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I guess I was very Lucky! When I was diagnosed with all of the above 25 years ago, my PC got me connected with the right mental doctor. Together they worked out a drug regiment for me that we all monitored together! Insurance covered it all. Yes there were some very Hard Times, but with their help and that of a friend I made it through it all. Over the years we have chaged drugs a couple times, if a new drug had less side effects, but I guess with age and research I have learned to understand our illness better!
This last year and a half I came down with Lyme Disease! If you want to through the "Wrench" into the pile, that was it.
I was give so many different drugs to help cure my symptoms it was scary! But as I said because of age and research and past experience I was able to ID when I was going over an edge or things were not correct!
It's my feeling that we are the only ones that can understand our body!
We need to understand what our bodies/mind is telling us.
You'd be surprised the number of doctors I fired right to their face! This coming from a 73 year old who was always taught never to doubt your doctor!
As you said Please stay away from ER and UC. The only time I will go to either now is when they wheel me in unconsious!
Best of Luck and my thoughts and prayers are with you!
Sundance (RB)
Replies to "I guess I was very Lucky! When I was diagnosed with all of the above 25..."
One more thing, some doctors and other health professionals do need to be confronted. They need a wakeup call to remind them that they are in the business of healing and helping. I should not say this, but I confronted a Mayo ER doc when I was in Phoenix. I have chronic pain and anxiety, so when I went in with a sharp pain in my back on the right side, the nurse looked at my history and blew me off. The doc came in and said, well, nurse so and so tells me that there is no need for any labwork as this seems just to be an extension of your chronic pain. I said to him, "Are you in the habit of accepting the nurse's judgement as final and not bothering to examine patients yourself." You should have seen his face. He then reiterated that she was very knowledgable and that he trusted her opinion, but he did then examine me himself. Turned out I had Shingles. Shingles often start on the right side of the back and are very, very painful. So I got some drug and pain pills and went on my merry way.🙄
This is not to condemn Mayo or any of the other docs and therapists I worked with who were very helpful and professional, but who knows what notes are now in my record from that encounter. It's both good and bad when a doc has access to your entire medical record by clicking a button. Sometimes it is helpful, but other times it removes their ability to be objective when assessing a patient.
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I have now been dealing with these issues for over 30 years, and I also feel I finally believe I have a handle on it. I know I will make it through the night even if I'm freaking out. When I first started taking mood disorder meds tricyclic anti-depressants were the only option. I almost lost my mind taking Imipramine, and Desyrel made me so depressed and sleepy. With so many new drugs now available, I have by trial and error found a combination that is not perfect but keeps me a functional human being without major swings. I don't think there is a perfect situation when so many brain chemicals out of whack, but I am functioning well now for the most part rather than closing my drapes and sleeping for days on end or becoming so anxious I was unable to sleep at night. I take it all in stride, but I have a difficult time watching young people or those who are just starting out struggling. So many people play with these dangerous meds on their own, and that's so dangerous. I know from experience!!!! Also, let's face it, as of now, trial and error and symptom descriptions are the only way to diagnose and medicate these conditions. Yes, I have confronted ER docs and nurses as well as clueless docs, especially when it comes to my loved ones or other vulnerable people.