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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)Comment receiving replies
Hi @kroolivera. You bring up a valid concern regarding your diagnosis and childbearing. As it just so happens, I was working on a clotting disorders and pregnancy blog post on our Hematology Connect Page. The story just went live, you can check it out here, https://connect.mayoclinic.org/newsfeed-post/clotting-disorders-pregnancy-what-you-need-to-know/. While we did not discuss Essential Thrombocythemia directly, you may find some of the information relevant and useful.
@kroolivera, if you don't mind sharing, have you discussed pregnancy with your hematologist?
Replies to "Hi @kroolivera. You bring up a valid concern regarding your diagnosis and childbearing. As it just..."
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Receiving guidance on pregnancy/infertility is a good idea — with your Hematologist-Oncologist and GYN.
From the age of 30, I began to do infertility work, and had a single conception and successful pregnancy almost 8 yrs later. Never once was there any focus on my (elevated) platelets. During those years, I had chronic sinus infections, which coincidentally elevated my platelets.
It’s 35 years later and my ET has been diagnosed and managed. While I’m beyond child bearing and more MDs are aware of ET, I hope that there’s a greater awareness of a correlation between infertility and patients with ET. Additional research and medical education, persistence and courage is all important. I was very lucky.
Good luck to you!