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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Apr 15 2:24pm | Replies (476)
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@kroolivera

Hi everybody, I'm here like you because i like to know people that is living with ET. I'm 32 years old and I was diagnosed ET 2 years ago. After that I'm taking Hydrea each day. Same @misty45 I have no symptoms. I'm grief because I'm woman and I wonder if I can be pregnant despite my condition. I'm trying to get information with doctors, cases of ET womens that got baby but I don't have certainty if it can be a big risk for me and for my baby. If you have bibliography of science cases let me know. Good luck and i hope we can share our experiences about ET.

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Justin McClanahan, Moderator | @JustinMcClanahan | Jul 3, 2018

Hi @kroolivera. You bring up a valid concern regarding your diagnosis and childbearing. As it just so happens, I was working on a clotting disorders and pregnancy blog post on our Hematology Connect Page. The story just went live, you can check it out here, https://connect.mayoclinic.org/newsfeed-post/clotting-disorders-pregnancy-what-you-need-to-know/. While we did not discuss Essential Thrombocythemia directly, you may find some of the information relevant and useful.

@kroolivera, if you don't mind sharing, have you discussed pregnancy with your hematologist?

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shenriq | @shenriq | Jul 4, 2018

Thank you for your response and link for further info.  I am very sure I raised no mention of nor concerns about pregnancy, as I am past that point in my life.  I have an appointment scheduled on 7/9 at Sloan Kettering for a second opinion, to have the top guns weigh in — continue my quest for facts and treatment.Many thanks for your outreach.Best always,

Susan Henriques-Payne

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