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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: May 27 5:58pm | Replies (3353)

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@merpreb

@anrw2018- I suggest that you see a Gastroenterologist for decisions concerning your stomach. Make sure that your tests are from specialists. II would also make sure that you have a CT scan of your lungs. There are so many reasons for SOB it's really a hit or miss for early diagnoses.

You might not be aware of inner stress if you are very active and aren't paying attention to your breathing. Do you also have restless leg syndrome with akathisia?

Do you a breathing machine for your apnea?

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Replies to "@anrw2018- I suggest that you see a Gastroenterologist for decisions concerning your stomach. Make sure that..."

I’ve seen multiple specialists, but GI is not one of them. I have pursued this several times over the last 30-some years, with no luck. They have honestly just given me medications to see if it will help, which I don’t like doing.

I had a cpap at one point, but was unable to use it because it made my breathing worse. I couldn’t get enough air when I was wearing it. I then lost about 50+ pounds, and no long had apnea.

No RLS with the akathisia. It’s more like I have to get up and move. I have this when I’m up and moving, too, it just is easier for me to catch my breath when I’m standing. When it’s not happening (like today, I’m fine), I can think about it and talk about it, and still having no symptoms.