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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: May 27 5:58pm | Replies (3353)

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@emimmed

I appreciate you saying that a lot. A lot of doctors make it seem like it’s all in my head and don’t really do all the tests that I think could be beneficial. It’s hard to keep standing up for myself and pushing for what I believe when all doctors come out with “it’s just anxiety”.

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Replies to "I appreciate you saying that a lot. A lot of doctors make it seem like it’s..."

@emimmed- It's tiring and frustrating dealing with doctors for sure. I'm very tired of hearing it's in my head. And I'm angry that this is still being said. Doctors should have to prove that they know this for sure and stop giving this diagnosis without proof.

Doctors are trained differently, and some in practice don't deviate at all from how they were taught. Some are trained to think outside the box and their patients benefit a lot from this. But one thing that is necessary, I believe is that we can't give up this fight and we can't continue to allow doctors to continue to insinuate that we've made things up just because they can't find at least a reasonable explanation for SOB.

What would happen if we all said, "No, that's no longer an acceptable response?" "I don't believe that my mental state is responsible for this or at least not fully responsible." Can we not ask for a reasonable explanation of the science that leads them to think this?