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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 15 hours ago | Replies (3416)

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@ptaylorboyd

I was tested ffg or molybdenum and I was 1.0. Range was 1.4 to 4, now its adjusted to 1.4 to 3.5. I did 21nme and t hff e clinic did a lot of stories tests.
People who are molybdenum deficiency cannot metabolize sulfate and sulfite. Mayo has best description online. Molybdenum deficient people also tend to have macular degeneration. I have mac-degeneration.
I was on my own in this journey as I was their first case.
I felt my way thru
I take 1 tablet....capsules with gelatin have sulfite....250 mcg of KAL molybdenum a day. Once I got solidly in range....took 21 weeks, I reduced to one tablet , 5 days a week. UW was afraid there may be side effects if I was too high. They just dont know.
NOTE. Eye doctor Rosemary Bruggeman is amazed that in 6 yrs since being diagnosed with mac-degeneration, there has been no progression. She was amazed.
POINT If people are tested for molybdenum, mac degeneration may be avoided. Kristen Reynolds of UW Madison and Dr Chetyl Gupta Milwaukee WI diagnosed me and saved my life.
My parents did not keep me but my brother said she was miserable all their adult life and blind. She did not know
Because even doc dont know or care about molybdenum, my 2 adult brothers scoff at my diagnosis. One has mac degeneration and wont get tested. His doc thinks I'm off kilter.
I'm retired univerdity adm and I have time to help

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Replies to "I was tested ffg or molybdenum and I was 1.0. Range was 1.4 to 4, now..."

@ptaylorboyd- That's wonderful that you would like to help. Have you been involved with advocating so far?