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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: Oct 23 10:20am | Replies (3405)

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@oldkarl

@tamaracaitlin You are right to push on your doctor. I have compiled a list of about 250 symptoms and medical signs which would point toward my autoimmune disease, and I have been medically diagnosed with about 200 of them including blood work, urine, various scans, etc., I have tried to get one of the 1-AAA labs to do molecular diagnostics with me, and they have so far refused. They have said that "Even if we diagnose it, there is no cure and no treatment for what you appear to have, (Gelsolin) so it does not matter anyway." Shows you the quality of health care in Oregon.

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Replies to "@tamaracaitlin You are right to push on your doctor. I have compiled a list of about..."

Even if there is no cure/treatment, it would still be helpful to put a name to what you have!! Geez, that's frustrating.