← Return to Mysterious shortness of breath: What has helped you?

Discussion

Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 7 hours ago | Replies (3355)

Comment receiving replies
@pete9140

Hi new to this board. My story started in 2012 when I thought I was having a heart attack with palpitation and chest pains. I Went to the ER and ended up staying for several days of testing just to be told my blood pressure was high. The attack happened again a month later but this time I also had severe heart burn and was sent home again after several days of testing. No diagnosis except for high blood pressure. Because of the heart burn I went to a GI Doctor who did a endoscopy and I was diagnosed with Barreits Esophagus with high grade dysplasia and a hiatal hernia. I had 5 ablations and the hernia fixed. It took several years but during this time i kept having these attacks that would last between 30 minutes and an hour. In Dec. 2017 I had another attack but it lasted for five hours,the EMT came while I was still having the attack and found I had a heart rate of 280 beats a minute. The Doctor diagnose me with SVT (a form of afib) In Feb of 2018 I had an ablation of the heart to fix the problem. (So it took 5 years to get diagnosed with SVT because by the time I went to the ER I was out of the attack and heart back to normal. The last attack lasted so long they finally caught it.) Soon after I started to have SOB and went to the pulmonary Doctor and after numerous test i was first diagnose with servere sleep apnea and then place on a CPAP with supplemental oxegen. I also had performed the methacholine challenge and tested positive for asthma. I was put on 2 daily inhalers that helped. How ever in the last sevral months the SOB got worse and I was sent for a pulmonary function test witch showed my breathing better than the last test.The Doctor than sent me for a CPET test that showed my heart and lungs were good but my ABG at rest prior to the test showed a Pa02 of 61 and a Sa02 of 91. and the Ve/Vco2 slope suggests that I have Excessive Dynamic Airway Collapse. (EDAC) The Doctor believes this is what cause my SOB. I am awaiting a bronchoscope to confirm this. If this is what I have the Doctor talked about having stents put into my bronchial tube. EDAC could be the cause of some of your SOB symptoms

Jump to this post


Replies to "Hi new to this board. My story started in 2012 when I thought I was having..."

@pete9140- Welcome to Connect. You certainly have been through quite a lot. Are you going to have the stents placed? Thank you for sharing your story. It opens up a new pathway for someone to check and just might help someone solve their SOB. This is what COnnect is all about, people helping people. It's a very generous gift to give.SOB is one of the most frustrating conditions that I find for lung health issues. There can be so many causes, and as you probably know anxiety and SOB go hand in hand.
How have you handled dealing with your justifiable fears and anxieties?