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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 5 days ago | Replies (3422)

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@helena4000

What's Lexapro for again?

These breathing problems take SO long to figure out. I am on 5 months now. Many people here have logged years. Worst place to have
problems because breathing issues can be due to soooo many issues.

Apologies if I mentioned this already: My echo did show inflammation around my heart that they first diagnosed as pericarditis, and then months later they took a stress MRI and think I had myocarditis because my heart is now scarred. Cardiologist however isn't convinced breathing (and chest pain, tightness) problems are from heart, & pulmonologist thinks acid reflux could be causing lung inflammation which is causing my inability to take a deep breath (randomly I just get these breathing attacks where I can't get a deep, complete breath to go down, and my body only calms down when I finally am able to get a deep breath to go down and hold it for about 10-15 seconds). For me all of my breathing issues and chest pain are in the right side of my chest. And like you, I feel like something is just not right.

I am having a second opinion with a cardiologist who has experience with myocarditis/pericarditis later this month, and my primary care doctor thinks I need to have a gastroenterologist check things out next month. I have also been prescribed inhalers, they've allowed some temporary relief.

Some things I think have helped a little that may help you:

-Incentive spirometer to strengthen lungs
-Technique for when you kind of feel like you are hyperventilating: block one nostril and breathe in through nose, out through mouth
-Xanax or lorazepam
-if they haven't sent you to a pulmonologist yet, ask about an Albuterol inhaler for when you start feeling sob.

For me this all started all of a sudden 5 months ago. Never had any of these symptoms before. But I am better at this very moment than I was 4 months ago. Did they do blood tests for viruses and respiratory panels for you? Sometimes strep can be sneaky and my doctor had me do an hiv test (negative). (But I did end up with strep throat last month.)

Please let us know if you get any updates on a diagnosis!

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Replies to "What's Lexapro for again? These breathing problems take SO long to figure out. I am on..."

Thanks so much for your thoughts and advice . I have taken Ativan which was mildly helpful but didn't solve the problem. I'm glad you were an advocate for yourself so that they could figure out what was going on with you and the pericarditis. For my all my breathing issues are on the left side of my chest...interesting you notice yours specifically on one side as well. Are you able to exercise or go up stairs the same as before this all started for you? Do you feel like you have "health anxiety" about this? For me this is becoming a whole other problem the longer I go without feeling better...