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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 5 days ago | Replies (3422)

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@gabrielm

@laurasue I think it was still good that you got checked out. If anything you ruled out a bunch of things and you know that you're in good health otherwise. I'm going to try CrowdMed soon to see if they might find something hidden that's not well known, and even tip them off to this forum so they can research what others are going through as well.

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Replies to "@laurasue I think it was still good that you got checked out. If anything you ruled..."

Gabrielm... Have they wandered into the area of PAH acronym for Pulmonary Arterial Hypertension? There’s 2 parts Primary & Secondary. It has to be found only by a Cardiologist who ALSO specializes in Pulmonary Care. I took, get this... Viagra prescribed by a specialized Pulmonologist in Phoenix at St Joseph’s Hospital now owned by Dignity Healthcare.
As it turned out after we moved to the Ozarks in Missouri we’d go up to Barnes Hospital in St Louis for tests every 3 months. The first time I had a total of 9-1/2 hours of testing and then finally saw a team of 7 doctors and the lead was the doctor Cardiopulmonary who thankfully said that I had, yes had, secondary PAH. Unfortunately primary PAH, unless something new has come on the scene, there’s no cure as of yet.
At that time I was upwards of 385 pounds with only 17% lung capacity due to my weight.
The panel said you MUST loose the weight FAST if you want to live and recommended a Gastric Bypass.
Before you say it, PAH doesn’t just happen to fat overweight people. It can happen to anyone at anytime.
The viagra would dilate the heart arteries down by the lungs and therefore help one to breathe easier.
It’d be worth asking about if You haven’t already!!