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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 4 days ago | Replies (3422)

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@chines118

I have the exact same set of symptoms. They started for me out of nowhere, in the middle of the night about 7 months ago. I feel like I can’t get in a full breath almost all of the time. The worst part is when I exercise, not immediately after, but the next day it worsens to the point where I am constantly on the verge of a panick attack. This is particularly hard for me, since before this I was in the gym for an hour a day, 7 days a week, and now I can barely walk for extended periods of time. I have a similar story with doctors, as well. I tried a pulmonologist, he said I don’t have asthma, as evidenced by my lack of response to steroids. He also ruled out vocal cord dysfunction, since those symptoms seemed confined only to the time of the exercise itself. Next I went to a cardiologist and everything appeared normal. Now I am going to see a gastro soon, and then hopefully get a endoscopy and bronchoscopy. Also, some weird things I’ve noticed about it are: caffeine seems to make it worse, it’s worse in the middle of the night, and it seems to get better when I’m really involved in a mental activity, especially things I enjoy (Please let me know if any of this is true for you guys). It’s been really discouraging getting no solid answers, which I’m sure you all can relate to, but I’m really glad that I’m not the only one out there. If we work through it together, maybe we can finally get it figured out. Hang in there everyone.

I’m 18 years old and male

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Replies to "I have the exact same set of symptoms. They started for me out of nowhere, in..."

Agreed, my symptoms are barely noticeable when i’m Mentally focused, especially on a video game or a movie but, not always. And neither when it involves stress or physical activity. Strangely enough Grape Fanta make my symptoms worse.

@chines118 I had the same thing happen when my SOB was especially severe. I had multiple panic attacks caused by the intense feeling of suffocation. My breathing exercises helped me a great deal but I haven't recovered 100%. I would quit caffeine (coffee, soda, etc.) and eat smaller meals throughout the day instead of large ones. Exercise, but keep it light - to what you can handle with your breathing - and try as much as possible to only breathe through your nose. Refuse the urge to take a deep breath when you possibly can, and breathe through your nose all the time. This helps you to not over breathe so much and may help regulate your breathing. It's difficult at first, but it helped a lot for me when I did it. I still only breathe through my nose and if I have to take a deep breath, it's just through my nose. I lift weights for exercise, I don't that much cardio (just walking whenever I can), and when I lift weights, I don't overdo it; I do as much as my breathing will allow which sometimes is a lot, other times not so much.

How did they rule out Vocal Cord Dysfunction? Problem with a lot of doctors is they just rule things out even when there isn't sufficient evidence to do. You could also have Tracheal Stenosis. But there is a thing called Exercise Induced Laryngeal Obstruction (basically VCD during exercise). the National Jewish Health Center in Colorado specializes in treating that.

I get a really tight throat. Like the muscles in my throat feel like they're choking me. I got fed up with it man. I feel you. I am 28, almost 29 and this shit started when I was 21. I reached out to the National Jewish Health Center to see if anyone there can help me out with a more multi-disciplinary approach and the processed everything. I am just waiting for them to call me and schedule me. . Isn't it frustrating? You literally have to see 10 different doctors and you have to wait weeks in between. The NJH have a program where multiple specialists will see you in a few days. This is the best approach to solving breathing issues because traditional thinking of breathing problems is flawed. It is not limited to your lungs.

One thing we have in common is that the breathing issues get worse the day after exercise, or the hours after. And I am stubborn, I will still go workout but then I regret it immediately. It's terrible, you shouldn't be punished like this for wanting to exercise and be active.