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Waiting for a kidney transplant

Transplants | Last Active: Mar 19, 2019 | Replies (35)

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@rosemarya

@tomkrush, Hi, Tom. I got my kidney and liver from a deceased donor at Mayo Rochester. The level of care that I received was of exceptional quality and compassion, from the top ranking surgeon thru every rank of staff, and volunteer that I met during my time there.

I am happy that Colleen has already given you some excellent reading material. I want to share 2 short videos from the Transplant Pages. These 2 short videos tell about kidney transplant at Mayo. I think you will enjoy hearing it from these kidney transplant experts. https://connect.mayoclinic.org/page/transplant/tab/resource-35/

@cmael, Do you remember how long you had to wait until your surgery was scheduled?

@cleverusername, Can you share a little about your own transplant experience at Mayo Scottsdale?

@threerrr3, I am thinking of you a lot these days. I hope you have a few free minutes to squeeze one response into your schedule. What do you have to tell Tom about the process of preparing to receive a kidney from a living donor?

Tom, How far away from Mayo do you live? There is transplant housing available that I will share with you when you are ready for it.

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Replies to "@tomkrush, Hi, Tom. I got my kidney and liver from a deceased donor at Mayo Rochester...."

I was given a list of transplant centers in the summer of 2017 by my nephrologist and it was my choice whether to choose that or dialysis. Since I had daughters willing to be a donor, I chose transplantation. After checking with my ins and being told that I had two choices, I chose Mayo. In Sept I called Mayo and set up an evaluation appointment for Nov. After getting the go ahead and finding out my two daughters were both compatible, one of my daughters went through a 3 day evaluation in Jan and received the go ahead. It was then up to me to schedule when I wanted to do it. I wanted to wait until April because of the weather. Southern MN gets some nasty winter storms. I had my transplant April 6th, almost 11 months ago. I was so fortunate that it all went so smoothly. I did have some recovery issues, but it all worked out. I agree the doctors, nurses and staff are so knowledgeable, and caring. It is a wonderful place. I have my one yr checkup with a kidney biopsy scheduled for Apr 1-3. Except for being sick with a cold for the month of December and slipping on ice and tearing my hamstring recently, I’ve been doing really well. 🤞

Yes I leave for Mayo on Wednesday surgery is scheduled for Friday morning as my sister is my donor ..my sisters all signed up to get tested and they sent them out blood test that they took to there doctor and had blood drawn and sent back to mayo .. from there is they were compatible my older sister was the first to send it back and she was the first sent to mayo for testing .. a three days of test and we found out before we left she was a match . And then it was my turn .. or ours actually to choose a date to have it done .. so we are scheduled March 8 2019 the 21 year of liver transplant !! So two miracles in one day .. so soon I can tell you how everything went but if you have an other questions .. it’s a pretty easy process.. but first they have to fill out the questionnaire.. step one .. Good luck !!