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Waiting for a kidney transplant

Transplants | Last Active: Mar 19, 2019 | Replies (35)

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@rosemarya

@christydave, I want to followup and to introduce you to some of our members who are experienced in pancreas issues. I think they will be able to share their thoughts. Have you been able to see your nephrologist, yet? How can we help you?

@cehunt57, @2011panc & @donnan, I want to introduce you to christydave. Do you have any thoughts or experience that might be helpful?

Rosemary

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Replies to "@christydave, I want to followup and to introduce you to some of our members who are..."

@rosemarya thank you for the introduction to @christydave. I also have questions like those of @2011panc. I understand that you are anticipating a kidney transplant but I don’t know the circumstances behind the need or how far along you are in the pretransplant process. Now there are concerns about your pancreas that led to a biopsy. It sounds like you need some explanation about the biopsy findings and prognosis plus information about how that effects your kidney situation and future transplant. I don’t know where your medical team is or what all it consists of (nephrology, endocrinology, oncology etc?) but you need to find out what the priority is for your treatment. Sometimes when you are listed for transplant something comes up such as a need for additional testing or a condition that needs to be treated first before transplant can proceed. When that happens your listing may be changed from active to inactive which means you are still waiting for transplant and accruing time but they are not actively looking for a donor match for you. Your coordinator &/or the lead physician of your medical team should be able to explain these things and sort out these aspects. If you have asked and are not getting any answers you may need to schedule an appointment with the provider that is most familiar with your history and go in with a list of your questions and concerns.