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Small Fiber Neuropathy

Neuropathy | Last Active: Nov 22 5:50am | Replies (106)

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@givinghope

Hi @johnbishop. The article link you shared is right on point. I can tell you from experience the EMG and any other test other than the skin punch biopsy will not give the patient a proper diagnosis. I was sent for multiple EMG’s where they would twist my legs like a pretzel haha until they could get a reading. None of the EMG tests over 3 years ever showed signs of SFN. Only when I sought a second opinion, waited six months for an appointment to have the skin biopsy and the QSART test done, did my life change in a positive way. Please don’t get me wrong, I was less than thrilled with confirmed SFN, however, at least now we had a course of treatment. As I’ve said before, Lyrica works really well for me. Many other meds (Cymbalta, etc) did not. Cannabis helps distract the brain. I encourage everyone with potential SFN to read the link shared by @johnbishop here. While it is from 2009, it is the most comprehensive, understandable article on that topic I’ve seen. I wish you all a positive, pain free day

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Replies to "Hi @johnbishop. The article link you shared is right on point. I can tell you from..."

Thank you for your input. Good to know I'm not the only one going crazy for proper dx!
I do not tolerate lyrica or any of these anti convulsant meds.
Finding some relief w med marijuana oil and just rcvd salve I believe John recommended from cbd nanomeds. (Smells refreshing as well).
Seeing 3rd neurologist this month. Well be asking for punch skin Biopsy. Can you tell me what that other test is? The QSART, not familiar w it.
Thank you very much,
Claire