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It's not all about the MELD Score
Transplants | Last Active: Nov 14, 2023 | Replies (217)Comment receiving replies
@jolinda I wasn't clear - I had a liver transplant (still have my original kidneys) and on post transplant day 5 my kidney function plummeted causing concern, a kidney consult and a week more in the hospital. My eGFR went down to the low 20's and they indicated that if it went lower I would need dialysis until they improved. Avoided that, but even now my eGFR is only in the mid-40's ar best.
Under the misery loves company umbrella, I feel a bit better hearing that so many others have experienced hair loss. It only started a few weeks ago - seeing strands of hair on my pillow after sleeping was scary.
Another symptom I've had has been hot flashes. I am 58 and post-menopausal having never had hot flashes before. Seems odd but I'll live, although as an Arizonan in summer I don't need to feel any hotter!
Replies to "@jolinda I wasn't clear - I had a liver transplant (still have my original kidneys) and..."
@amyintucson I had terrible hot flashes, primarily at night. I would wake up and throw the covers off. They gradually subsided, but I still get them a bit, never more than one a night, some nights none.
I hated the hair loss too, but biotin did help. For some reason I’m losing some again. There’s always a lot on the shower floor after I shower so I just bought some biotin again and plan to resume taking it.
JK
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Although we had different transplants the drugs and surgery trauma seem to match up. Hair loss is minor compared to organ failure but still matters. We went through all of this to live our best lives and my best life includes hair 😉. Sorry to hear your kidneys are getting beat up too, not good. All my best, J.