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It's not all about the MELD Score

Transplants | Last Active: Nov 14, 2023 | Replies (217)

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@johnshaw

Hi Rosemary
I have had frank conversations with my liver doctor and I continue to be hopeful. I do service work for AA, giving rides, and meeting with those who request it. I take my meds and have blood work done monthly. I also do a weekly urinalysis for drugs and alcohol. Patients who test positive are often dropped from the transplant list, per most insurance companies. I am in the best shape of my life, ironically since I almost drank myself to death. I know that at some point, my health may decline to the point where I need a transplant. Until than, I will continue to live a productive, healthy life, and will deal with symptoms as they appear. Ideally I would love my liver to heal itself so that I do not need any further intervention. My doctor has made it clear that my liver is not viable and at some point it will need to be replaced. I will deal with that if / when that point arrives. As all patients, I do live with that anxiety over when that point arrives. Thank you for your response.

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Replies to "Hi Rosemary I have had frank conversations with my liver doctor and I continue to be..."

@johnshaw It sounds as if yes, a transplant is in your future but not immediate future. I too was anxious and actually thought of not having one, but as my condition worsened it changed my mind. Now, being post-transplant by 2.5 years, I think how crazy I was to not want one. My life is so improved. Sure, there are some difficulties due to the immunosuppressants, but I can live with those relatively small problems.
From what I have read, the vast majority of patients who have liver transplants have few problems afterward, and as long as you keep up doing as you are, staying in shape, etc., then I am sure you will be the same. I worked hard at getting into better shape prior to my liver transplant and it really did make a difference.
JK