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It's not all about the MELD Score

Transplants | Last Active: Nov 14, 2023 | Replies (217)

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@rosemarya

Hi, @johnshaw. I am a transplant recipient. I received both liver and kidney simultaneously from the same deceased donor. That was in 2009. I was diagnosed with liver disease almost 8 years before I became a transplant candidate. If my memory serves correctly, my score was mostly steadily rising. In all honesty, I never paid any attention to that number because how I felt told me what I needed to know. I was more concerned with trying to maintain some level of physical activity and to combat the excessive nausea as well as itching and ascites. I can understand how you feel as you are living with the unknowing. I want to congratulate you for your strength to overcome your alcohol dependence and to develop a new healthy lifestyle. That will be a major benefit as you move forward with whatever path your liver takes.
I hope that you looked at the information that was posted earlier that says "Since your health condition can change frequently, your doctor will send you to the lab for updated blood work routinely, so they can assess your condition often"....The MELD Score: Definitions and Frequently Asked Questions https://connect.mayoclinic.org/page/transplant/newsfeed-post/the-meld-score-definitions-and-frequently-asked-questions/
I am sorry that you feel so poorly, but it sounds like your doctor is keeping a close watch on your liver. Will you keep us updated?
I have always been told that all liver disease has some similarities, yet no two of us are alike in what we experience. The best we can hope for is to be patient and to do everything to promote out best healthy living during the difficult journey so that we are helping our bodies prepare for eventual surgery.
I am happy that you have joined our fellowship! I invite you to brouse thru all of the discussions and to know that you are welcome to join in anywhere.
What has your doctor said she wants to learn from the sonogram at end of May?

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Replies to "Hi, @johnshaw. I am a transplant recipient. I received both liver and kidney simultaneously from the..."

@rosemarya
Well I am wondering if the Drs have any clue what path this disease will take. Going to my hep Dr tomorrow and that is one of my many questions for her.
The itchiness from excema is gone for now...but still on the fri ge. Now they are concerned about my heart so I have a heart monitor for 14 days and a catherization next Wed. Oh yes..a sleep study and test too.
The MRI I had at Mayo was all good except for a spot they found on the lung..ultrasound cleared that...
.whew!
If they could only tell me what comes next.....that doesnt happen with this disease...we are all different. PS I am very fortunate to be a patient of the transplant team at Tampa General Hospital and Mayo Jax Transplant team. I have meld of 6 down from 8. So, I know Im getting very good care and they traet me as if my meld were 20. Not on the hot list deemed too early.