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It's not all about the MELD Score
Transplants | Last Active: Nov 14, 2023 | Replies (217)Comment receiving replies
@rosemarya I feel your warmth and empathy. I do trust in the Lord and know I shouldn't lose faith. I'm just in despair and I guess that's normal. I do pray for the transplant donor's family and hope they are consoled with the fact that they have given a gift of life through their loved one.
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gaylea, You have mentioned that you are homebound now. Do you have any friends nearby , or not so nearby, that you could ask to drop in for a short visit now and then? It is OK to ask. I found out that people often want to do something, but don't want to impose or else don't know what to do. Very few people are familiar with our needs as we wait for our transplant.
I realize that the last thing that you probably want to do right now is to visit/socialize, however sometimes a short visit and a cup of tea, is something to look forward to, and gives you a temporary diversion.
What you are going thru is the real pre-transplant waiting experience - it is not like a TV version that I once tried to watch (never again) . Let's face it, waiting and getting sicker is not hollywood material. I am thinking about you.