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It's not all about the MELD Score
Transplants | Last Active: Nov 14, 2023 | Replies (217)Comment receiving replies
I just had my one year check up and have been on the for the same time. My MELD was high enough at one point for me to be activated. At this check up my MELD has gone down to 11. I feel bittersweet about it. I’m going to work on moving on to goals I thought I would have to address after transplant - change in housing, etc.
Replies to "I just had my one year check up and have been on the for the same..."
@contentandwell The side effects continue to make me feel “sick,” fatigue and watching carefully for hepatic encephalopathy take my time.
@kltchrmn The HE is the worst. Has your doctor prescribed xifaxan? My hepatologist did for me and it kept me free from Hepatic Encephalopathy for almost a year, and then as my condition worsened I did have another HE episode and had to resume taking lactulose along with the xifaxan.
I fortunately was not too sick most of the time, except when I took lactulose.
JK
I take Xifaxan and Lactulose. Lactulose does not cause me any trouble as I’m on such high doses of diuretics. The last time I had a paracentesis was in June of 2017 at May and they drained 14 litres of fluid! Have not needed one since!
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@kltchrmn I am always amazed when I hear of MELD scores going down like this. I really don't understand how that happens. I thought the best I could do was to slow the progress of my cirrhosis, and my MELD continually increased slightly.
Since yours is down to 11 now I hope that indicates that you are feeling fairly well also.
JK