The waiting is hard but I try and do what I can. There are days I can't make it out of bed but others where I can accomplish some things. It's hard to make plans as I never know how I'll feel on a given day. I do travel some - got to try to keep the brain engaged somehow!

@amyintucson The wait is hard. I did live my normal life, but I did not travel anywhere for fear of having an episode and landing in an unfamiliar hospital. I did keep active locally though.
JK

I have the same concern about traveling but I have family in Texas that provides great support. I have a card that I carry listing my conditions plus my medications.

@amyintucson During the summer of 2015 I was totally independent, I drove long distances by myself with no problem, and the only reason I didn’t do any long distance traveling was because I did not want to be stuck in a strange place, particularly one where I could not speak the language, and have an HE episode.
At the beginning of the summer of 2016 I told my husband, much to his surprise, that I did not want to drive long distances alone. Even though I had not had a problem I did not trust myself. Then things went downhill in July, and further and further downhill in August, so I guess I knew that things were heading south.
JK

I wear a medical ID bracelet. I was advised to wear one after my after my transplant. I chose to purchase a pretty silver one because I knew I would wear it every day. I am able to make updates to my medication list as well as other vital information in case it is ever needed in an emergency.

@rosemarya
I wear one and have several from Lauren'sHope.com
Both men and women.

@rosemarya I had given that a thought, but then forgot about it until you mentioned it. I'll have to talk to my husband about getting one after his surgery.

I have worn the same "silver" one for 9 years! It can be 'dressed up' by adding an extra bracelet on my wrist, or worn 'as is' like I did last week during my hiking adventure. The important thing for me it to wear it all the time.

I opted to get mine thru MedicAlert Foundation because they provide a 24 hr phone number that will connect the emergency services to my current medical status.
There is an annual feel for this service. However, I can update my medical history and changing medications as needed. Also provides a means to add my personal contact info, and most important to me (and comfort to my husband) is that I can include the 24/7 emergency call number to Mayo Transplant Dept. Here is their site ( https://www.medicalert.org/ )

While I was post transplant status, and during the preparation to go home phase of my recovery, my transplant team recommended that I wear a medical alert ID. They did not recommend any particular type. I think that you might hear more about this after husband's transplant.
My son, a first responder, says that the emergency personnel are trained to look for the medical ID's.

Rosemary

The anxiety and depression are the worst thing for me, especially with Covid and not really being able to see people. Gives me too much time to think!