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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
Just Want to Talk | Last Active: Oct 15, 2023 | Replies (92)Comment receiving replies
As Mayo continues to reject the ME/CFS clinical recommendations from the US Centers for Disease Control (CDC), I will no longer be participating in Mayo Connect. Patients need evidence-based treatments. Who could argue with that?
David Tuller DrPH at UC Berkeley has written more, and it's worth a read.
http://www.virology.ws/2018/08/20/trial-by-error-more-mayo-please/Goodbye.
Replies to "As Mayo continues to reject the ME/CFS clinical recommendations from the US Centers for Disease Control..."
well, what is REALLY going on with Mayo? They will NOT acknowledge that ME is a real disabling condition for millions of people, mostly women!!
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Thank you for bringing this article to my attention, @webdog. I hope you will stay around long enough to get my reply.
I see that Dr David Tuller is working hard to change the attitudes and approaches of medical professionals around the world, such as the open letter to the editor of the medical journal the Lancet (http://www.virology.ws/2018/07/10/trial-by-error-yet-another-appeal-to-the-lancet-with-more-on-board/) in July 2018.
I see that he also wrote an article on the same blog calling out the CDC (http://www.virology.ws/2015/10/21/trial-by-error-i/( in 2015. And now the CDC has revised its clinical recommendations for ME/CFS. Change is happening.
Webdog:
I have found your participation on Connect to be very informative on ME/CFS. You are a valuable resource and support for people searching for information, who are new to the condition and/or have not done as much research as you. For this reason, I would like to invite you to stay with community and hope you'll continue to inform us.