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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
Just Want to Talk | Last Active: Jun 16 6:39pm | Replies (96)Comment receiving replies
The US CDC has released new clinical care guidelines for ME/CFS. Emphasis is on symptom relief and quality of life improvements. No recommendation for Cognitive Behavioral Therapy or Graded Exercise Therapy.
The CDC makes it absolutely clear that:
- "ME/CFS is a complex, chronic, debilitating disease with systemic effects."
- "ME/CFS is a biological illness, not a psychologic disorder."
- "Standard exercise recommendations for healthy people can be harmful for patients with ME/CFS."
https://www.cdc.gov/me-cfs/healthcare-providers/index.html
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One of the most debilitating symptoms of ME/CFS is "Post Exertion Malaise", which is severe pain and fatigue after exertion as in exercise. Recently, I read that research indicates that patients with ME/CFS have low blood volume, which results in too little blood reaching the brain and is probably a cause for PEM. Low blood volume can also cause ischemic events in the brain. There is a medical test called a Daxor test that evaluates blood volume. this test created by the Daxor Corporation is available at certain hospital. It is referred to as BVA test.
Has anyone had this test and have the resulting information been helpful? There seems to be treatment for it.