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Elevated ammonia levels

Digestive Health | Last Active: Feb 25 1:06pm | Replies (48)

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@adah

What kind of symptoms made you be hospitalized for HE? If you don’t mind me asking?

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Replies to "What kind of symptoms made you be hospitalized for HE? If you don’t mind me asking?"

@adah I don’t mind you asking at all. It was a terrible time but if what I went through can help anyone else I’m happy to talk about it.

Some of my HE episodes were mild. I would have a bad stomachache, feel out of it, go to bed and wake up hours later, or the next morning and be fine. The more serious ones caused some delirium, non-sensical behavior, and complete forgetfulness. For instance one time I was thirsty and I kept going to the kitchen to get a glass of water. I ended up with about four glasses in front of me on the table. I also put some clothes on backwards. One time I became very unresponsive, I just sat on the sofa staring into space. That was probably the worst because HE episodes can cause coma and even death so the unresponsiveness was probably heading to that. I was also very belligerent and combative. There was no way my husband would have been able to drive me to the hospital so I ended up going in an ambulance about three times.

My episodes always started with a stomachache and fatigue. If I was out anywhere and my stomach felt the least bit off I would immediately head home. Most often it was a false alarm but better safe than sorry. I was fortunate in that most of the time I was able to lead my normal life whereas some people are in a constant fog.

Please feel free to ask any other questions you want answered, either here or in a PM.
JK