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@jk thanks for the reply. I have tried 2 different transplant center. My husband is 67. I know the cut off is 70. So I am really pushing for help. When my husband got really bad since last March, his liver doctor gave me the run around. Told me it was a sugar problem. His sugar doctor took a month to see and said it was not sugar, in fact his sugar was being very well maintained. So then I was told to try a neurologist, his brain is normal. I even had to go to another neurologist and he said the same thing. So I decided to go to the liver transplant center in Newark. He has no cancer, no brain problem but since last March he has trouble walking. High ammonia like I said. Newark said not mobile enough and was told not to come back. So I went to New York presy he gave me zinc which is a drop in the ammonia bucket. Zinc is from the 1950's
Thanks for the info on SRTR ORG. I will check it out. I really appreciate your sympathy.
Replies to "@JK thanks for the reply. I have tried 2 different transplant center. My husband is 67...."
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@chrissey Not all transplant centers have an arbitrary cut off age. I don't believe mine, Mass General, does. They put you through a battery of tests and determine if you can withstand the surgery. I was actually surprised at how healthy I was/am! I was two days short of 69 when I had my transplant. There are people in their sixties who are not as healthy as people in their seventies, so it's crazy to restrict by age.
You may have seen previous posts of mine. My HE episodes were thought to be of neurological origin so I was sent to a neurologist. He was the doctor who first suggested that it was my liver, after which with further tests they diagnosed NASH cirrhosis.
Don't give up. Try another transplant center. I think those that are at teaching hospitals may have better. NY Presbyterian is associated with Columbia, isn't it? If so I am surprised that they were not receptive.
I hope and pray that you find a center that will take him on. What causes his mobility problems? I am wondering if that restriction is because part of the recovery process requires mobility. I did have PT after my transplant.
JK