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Elevated ammonia levels

Digestive Health | Last Active: Feb 25 1:06pm | Replies (48)

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@chrissey

I am very glad that you got a liver transplant. My husband was told that he was not moble enough and was rejected. Don't know what to do now. His ammonia runs high even with the lactulose and rifaxan. I guess they just want him to die.

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Replies to "I am very glad that you got a liver transplant. My husband was told that he..."

@chrissey Chrissey, that is so disheartening. I am so sorry for you and your husband. Have you tried going to a different transplant center? Rules can vary with different centers. When I was first diagnosed and became a transplant candidate the hospital I was using told me I might want to dual list because other regions could probably transplant me sooner. In investigating that I discovered that some had age restrictions, and some had BMI restrictions. My BMI was over 30 and some centers would not transplant patients with that BMI so I lost weight. My center did not have that restriction but I did not want that to be a problem if I needed to get a transplant from a center where it was a restriction.
I would definitely look into other centers. There is a great database of transplant centers that you could use to find transplant centers that are closest to you, and which have had good results. It's SRTR.org -- The Scientific Registry of Transplant Recipients. There is also a business that helps people looking for transplant centers. They post a lot on Facebook for free but I presume they must charge for individual consultation. It's Compare Transplant Centers.
I hope you can find a solution to this. How old is your husband?
JK