Hello jstdnw,
Congratulations on your anniversary! I read with interest your pathway to diagnosis. What a journey you and your family have had. I also have a diagnosis of NSIP. It is a tough one and most no one has heard of it. The pulmonary fibrosis diagnosis came first in about 2013. At that time my symptoms were minimal. Several years later I became breathless skiing which lead to visiting my local pulmonologist and getting a second opinion at Stanford, CA. Brocoscopy, CT, PFT and blood tests, later one MD says dx is Pulmonary Fibrosis, unclassified...the other NSIP. Both agree on the current treatment. I was a year on 5mg prednisone and 1000 mg Mycophenalate Mofotil/Celcept. Recently I have transitioned to 2000 mg Mycophenalate. In January I will have more testing.
Several things I have found helpful: The book Ultimate Pulmonary Wellness by Noah Greenspan, the organic herbal teas Breathe Easy and Throat Coat and moderate exercise.
Keep in touch.

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