Minimizing my effort as much as possible and trying to complete as much as I can at one go whenever I’m up moving within my home ie. meal breaks + toilet breaks, make sure I bring along my survival kit (my water bottle with hot water for my itchy throat to prevent coughing, my small portable fan whenever I move, my menthol medicated oil that I inhale to soothe my airway).

I used to shower at least 2-3 times a day with daily hair washes but lately these few weeks I can only do hair washes every two days once and need my home helper to assist me. As much as I still like to have my daily showers, but because I stay in bed most of the time during this recovery period, I choose to just wipe my body with warm water and soap every alternate days. And also because of the prednisone that I’m taking makes me sweat easily, I try not to move that much and stay indoors so I won’t need to feel the need to shower every day.. because it’s really tiring.

I’m also taking Amitriptyline at night bedtime to reduce my coughs. I started this about 3 weeks ago and it’s really helping. My mucus is getting lesser...

Will share more soon.. hope to hear back from anyone!

@bleo, I want to say hi, and to send you my thoughts and best wishes for you as continue to struggle with so many bothersome symptoms. I hope that you will learn something positive when you visit your transplant team in a few weeks. I am a liver/kidney transplant recipient, and before my transplant, my symptoms were extremely difficult, too.
After you meet with your new lung team, if you are going to be eligible for a transplant, I invite you to join us in the transplant discussion group.
Hugs,
Rosemary

Hi @rosemarya Thanks for your best wishes! I will keep you all posted once I have my first meeting with my new lung team. Keeping my fingers crossed!

Been watching videos of life after transplant on youtube and they're really inspiring. And I'm so moved by them. So determined to fight and their positive attitude made them overcame the challenges.