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Neuropathy Pain-Medical Community’s Reluctance To Investigate

Posted by timmckinney @timmckinney, May 2, 2018

Been dealing with idiopathic peripheral neuropathy for the past 6 years and after the first year with my GP and an extensive visit to a major university hospital, nobody seems inclined to make any further attempts to locate a possible cause or positive pain management program. Is this illness a finality that is a just deal with it situation for the rest of a patents life? I now see why depression and desperation are words used quite often by people with this affliction.

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liz223 | @liz223 | May 2, 2018

Have they run any tests? My Neurologist ran a number of tests including an MRI, but nothing has shown up. I'm one of the fortunate ones and mine has seemed to stop advancing. I have taken Gabapentin, but am slowly coming off now. The stinging I had in the beginning has stopped. It seems to be only from my knees down and in my hands. Hope you find help.

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2 replies
lioness | @lioness | May 2, 2018
In reply to @liz223 "Have they run any tests? My Neurologist ran a number of tests including an MRI, but..." + (show)
@liz223

Have they run any tests? My Neurologist ran a number of tests including an MRI, but nothing has shown up. I'm one of the fortunate ones and mine has seemed to stop advancing. I have taken Gabapentin, but am slowly coming off now. The stinging I had in the beginning has stopped. It seems to be only from my knees down and in my hands. Hope you find help.

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Glad to hear that it's out of your arms,hands the way I got rid of b me was sleeping with no pillow

REPLY
timmckinney | @timmckinney | May 2, 2018
In reply to @liz223 "Have they run any tests? My Neurologist ran a number of tests including an MRI, but..." + (show)
@liz223

Have they run any tests? My Neurologist ran a number of tests including an MRI, but nothing has shown up. I'm one of the fortunate ones and mine has seemed to stop advancing. I have taken Gabapentin, but am slowly coming off now. The stinging I had in the beginning has stopped. It seems to be only from my knees down and in my hands. Hope you find help.

Jump to this post

Blood work, nerve conduction study etc. Found nothing. Gabapentin seems almost worthless. Dumbs it down but not a lot.

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