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Replies to "Hi @ainsle14. I have had numerous Ct's and MRCP's, Xrays and probably 12-15 ERCP's. The scans..."
Hi Gary, I was diagnosed with pancreatic divisum in 2012 and it was so bad I had surgery at Cleveland Clinic to help open the calaspsed ducts. I have also had celiac plexus blocks, and a spinal cord stimulator that was part of a research study for pancreatic pain. Most of this occurred in 2012-2013. By 2015 I was almost “normal” as I could eat and drink. Recently, I have started pain again and elevated lipase levels. My Dr at OSU (pancreas specialist) is starting the scans again, MRCP, ect to see if those ducts have closed again! Anyone who reads these posts, please know that the pancreas is definitely an unforgiving organ and the Doctors are just now learning more about the pancreas and studies to help diagnose issues. You ALL have to be your own advocate and fight for the medical system to listen. I just came out of an attack and my amylase is almost always normal, while my lipase is currently 404/82. My pain level is about a 6 daily and goes up when I eat. If I have learned anything, advocate for yourself, find a specialist and know that you will hurry up and wait. My first episode with this was from 2009- 2013, and finally had some relief by 2015. Keep on KEEPING on and God bless
Hi there, @gman007 . May I ask who you see at the Medical Univ of SC? Thank you so much, Lisa