Post-Nissen fundoplication bowel and other problems: What helps?

Posted by nirolk @nirolk, Apr 29, 2018

I had a nissen wrap operation in 1999. I still have problems at night after about 4 hours of sleep. I've tried all kinds of drugs to help relieve the gas. Right now I am on 40 mg of pantoprazole in the morning before breakfast. Most of the time days are fine. I have problems being regular on bowl movements, so I have a high amt of gas from the meds I take to go number 2. At night is when I have real problems. Any kindred spirits out there?

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Profile picture for faithful55 @faithful55

I am posting my story to see if anyone else is experiencing the same symptoms that I have been experiencing after having a Nissen fundoplication.
In 1998, I had a hysterectomy. Three weeks after I started to vomit after eating a meal and had terrible migraines. I went to my doctor and he ordered blood work and I was told that I had h-pylori bacteria. I was put on high antibiotics. After taking the antibiotics the migraines stopped but the heaving continued off and on. In 1999, I had my gallbladder removed because I had a functional test that revealed that my gallbladder was not operating correctly and probably was the source of my vomiting. About six months after the gallbladder surgery, the vomiting returned. I went back to my doctor and he referred me to a surgeon who told me that I had classic GERD. In 2000, I had a Nissen fundoplication. Since then, I still would experience nausea but could not heave because of the wrap. During those times of nausea, I would have to ice myself down to reduce the dry heaves until my brain would tell my system to try the other way. I also was having an acidic stomach. To minimize the acid in my stomach, I was but on Zantac.
As the years progressed I have had episodes of extreme bloating and constipation, nausea, mind fogginess, acid reflux, extreme hot flashes, and rashes. Over almost 2 decades, I have seen numerous gastroenterologists and alternative medicine doctors. I have been put on acid reducers and medications to help with the constipation. One gastroenterologist even diagnosed me with gastroparesis. In 2017, I had a 4 hour stomach emptying test that revealed that I did not have gastroparesis. But from 2013 to 2017, I changed my diet to adjust my eating based on the diagnosis.
In 2016, I started getting colonics because I was experiencing constipation, fogginess, extreme hot flashes, fatigue, and weight gain. I stopped getting the colonics after a year. It was too much of a strain on my system.
In 2017, I had an endoscopic dilation. I had been experiencing constant bloating and extreme hot flashes. To me, my hot flashes were coming from the laboring of my digestive system to digest the food and also when I would get stressed. After the dilation, I had to cut out a lot of foods that were high fiber and gaseous. I used to be able to drink tea, but tea gases my system. I cannot eat chips or anything that has a high salt content because at times it upsets my stomach and makes my face feel like it is crawling and I would break out. I eat small meals these days because it takes too long for my system to digest a meal. I have to take MiraLax and Citrucel every night to keep my system running. I try to monitor my weight to make sure that I am not putting on weight because for me it signals that the food is not passing and is sitting in my colon.
As I am getting older, the Nissen is causing more problems for me. I saw my most recent Gastro doctor last week and told him that I wanted to get the wrap undone. I would appreciate it if anyone has had a similar experience as I have and share with me what they have done or are doing to remedy their situation.

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Your narrative is so similar to my experience... But 40 pounds is too much.. your choice your health take control and get the best help available.

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Profile picture for ZeeGee @fourof5zs

@faithann64 Try a probiotic. I had dumping syndrome after a Nissen... I had gallbladder out at same time. It was awful. I tried several different probiotics and none worked until I tried Align that my husband's cousin recommended. Yogurt such as Activia can help. There are a few other probiotic foods.. just search for them. Stay away from greasy foods, cut down on sweets. Keep a journal of your symptoms.. what triggers or makes them worse.

I eventually had to have a gastric bypass. It has side effects too. Read up on it as much as you can before deciding to have one and write down questions to ask your doctors. Dr Bowers at the Mayo Clinic in Jacksonville Fl did mine... he is pretty awesome i my book. I had a giant hiatal hernia that caused my problems.

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Yes my next step is probiotics , and yes Doc is talking about gastric bypass ? I will read up on it . Thank you

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Profile picture for faithann64 @faithann64

I had Nissen Fundoplication & Hiatal Hernia surgery 6 months ago . I've had nothing but problems ! Been in and out of hospital, seen surgeon 2 times and said it takes up to a year for everything to settle down , ugh . Ridiculous, ,, I have another appt coming up in week . My primary doc thinks I have dumping syndrome, I have allot stomach pain all the time , bloating, nausea, diarrhea, hot sweats, cramping and feels like I want to vomit all the time pretty much. When i do eat it basically runs straight thru me within 10 minutes ? Since the surgery 6 months ago I've lost 40 pounds. My primary doc has me back on liquid diet again ????? I wished I hadn't had it done, I suffered with acid reflux and allot stomach issues and the surgery was supposed to fix allot of it ? My Doc thinks I'm going to need gastric bypass ! Really don't want it . Guess I'll wait and see what Surgeon has to say ?

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@faithann64 Try a probiotic. I had dumping syndrome after a Nissen... I had gallbladder out at same time. It was awful. I tried several different probiotics and none worked until I tried Align that my husband's cousin recommended. Yogurt such as Activia can help. There are a few other probiotic foods.. just search for them. Stay away from greasy foods, cut down on sweets. Keep a journal of your symptoms.. what triggers or makes them worse.

I eventually had to have a gastric bypass. It has side effects too. Read up on it as much as you can before deciding to have one and write down questions to ask your doctors. Dr Bowers at the Mayo Clinic in Jacksonville Fl did mine... he is pretty awesome i my book. I had a giant hiatal hernia that caused my problems.

REPLY
Profile picture for faithful55 @faithful55

I am posting my story to see if anyone else is experiencing the same symptoms that I have been experiencing after having a Nissen fundoplication.
In 1998, I had a hysterectomy. Three weeks after I started to vomit after eating a meal and had terrible migraines. I went to my doctor and he ordered blood work and I was told that I had h-pylori bacteria. I was put on high antibiotics. After taking the antibiotics the migraines stopped but the heaving continued off and on. In 1999, I had my gallbladder removed because I had a functional test that revealed that my gallbladder was not operating correctly and probably was the source of my vomiting. About six months after the gallbladder surgery, the vomiting returned. I went back to my doctor and he referred me to a surgeon who told me that I had classic GERD. In 2000, I had a Nissen fundoplication. Since then, I still would experience nausea but could not heave because of the wrap. During those times of nausea, I would have to ice myself down to reduce the dry heaves until my brain would tell my system to try the other way. I also was having an acidic stomach. To minimize the acid in my stomach, I was but on Zantac.
As the years progressed I have had episodes of extreme bloating and constipation, nausea, mind fogginess, acid reflux, extreme hot flashes, and rashes. Over almost 2 decades, I have seen numerous gastroenterologists and alternative medicine doctors. I have been put on acid reducers and medications to help with the constipation. One gastroenterologist even diagnosed me with gastroparesis. In 2017, I had a 4 hour stomach emptying test that revealed that I did not have gastroparesis. But from 2013 to 2017, I changed my diet to adjust my eating based on the diagnosis.
In 2016, I started getting colonics because I was experiencing constipation, fogginess, extreme hot flashes, fatigue, and weight gain. I stopped getting the colonics after a year. It was too much of a strain on my system.
In 2017, I had an endoscopic dilation. I had been experiencing constant bloating and extreme hot flashes. To me, my hot flashes were coming from the laboring of my digestive system to digest the food and also when I would get stressed. After the dilation, I had to cut out a lot of foods that were high fiber and gaseous. I used to be able to drink tea, but tea gases my system. I cannot eat chips or anything that has a high salt content because at times it upsets my stomach and makes my face feel like it is crawling and I would break out. I eat small meals these days because it takes too long for my system to digest a meal. I have to take MiraLax and Citrucel every night to keep my system running. I try to monitor my weight to make sure that I am not putting on weight because for me it signals that the food is not passing and is sitting in my colon.
As I am getting older, the Nissen is causing more problems for me. I saw my most recent Gastro doctor last week and told him that I wanted to get the wrap undone. I would appreciate it if anyone has had a similar experience as I have and share with me what they have done or are doing to remedy their situation.

Jump to this post

Hello- I have had to have 3 Nissen Fundoplication surgeries to fix hiatal hernia. The first two came undone and were too loose. The third one, they also did a combo Wedge Gastroplasty (took a piece of my stomach to use to make my esophogus longer) and did the Nissen redo. I have been having a lot of problems with sharp upper abdominal pain especially when eating, nasuea, bloating. The pain gets so bad sometimes that I can't walk or stand up straight. I am on Zofran as needed for Nausea and now using Protonix (again) in the morning. I have been alternating on Omeprazole and Protonix every so often because it seems I end up getting used to or building a tolerance to these meds. The pain has been increasingly worse the past month. Had a barium swallow and showed no reflux or hiatal hernia. I go next week for an endoscopy. Can a Nissen be too tight? Is that something you would see on the barium test or not? I am nervous I may need another surgery again and I am just trying to see if anyone else out there has had this issue?

REPLY
Profile picture for gabigirl26 @gabigirl26

Hello- I have had to have 3 Nissen Fundoplication surgeries to fix hiatal hernia. The first two came undone and were too loose. The third one, they also did a combo Wedge Gastroplasty (took a piece of my stomach to use to make my esophogus longer) and did the Nissen redo. I have been having a lot of problems with sharp upper abdominal pain especially when eating, nasuea, bloating. The pain gets so bad sometimes that I can't walk or stand up straight. I am on Zofran as needed for Nausea and now using Protonix (again) in the morning. I have been alternating on Omeprazole and Protonix every so often because it seems I end up getting used to or building a tolerance to these meds. The pain has been increasingly worse the past month. Had a barium swallow and showed no reflux or hiatal hernia. I go next week for an endoscopy. Can a Nissen be too tight? Is that something you would see on the barium test or not? I am nervous I may need another surgery again and I am just trying to see if anyone else out there has had this issue?

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@gabigirl26 When I had my Nissen repair the surgeon used mesh in a place he should not have and it caused me a lot of pain. I went to the Mayo in Jacksonville and had the Nissen undone. They removed the mesh with part of my fundus and could not do a redo. They repaired the hernia, but it failed. Had to have a gastric bass to fix the hernia. I had complications and more surgery. Now pain if I eat too much at one time or bend too much.

I hope the cause of your pain is found and there is a fix for it. .. without any complications.

Zaroga

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Profile picture for gabigirl26 @gabigirl26

Hello- I have had to have 3 Nissen Fundoplication surgeries to fix hiatal hernia. The first two came undone and were too loose. The third one, they also did a combo Wedge Gastroplasty (took a piece of my stomach to use to make my esophogus longer) and did the Nissen redo. I have been having a lot of problems with sharp upper abdominal pain especially when eating, nasuea, bloating. The pain gets so bad sometimes that I can't walk or stand up straight. I am on Zofran as needed for Nausea and now using Protonix (again) in the morning. I have been alternating on Omeprazole and Protonix every so often because it seems I end up getting used to or building a tolerance to these meds. The pain has been increasingly worse the past month. Had a barium swallow and showed no reflux or hiatal hernia. I go next week for an endoscopy. Can a Nissen be too tight? Is that something you would see on the barium test or not? I am nervous I may need another surgery again and I am just trying to see if anyone else out there has had this issue?

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Hi,
God bless you for going through 3 NFs. I really never experienced the sharp pain but my stomach would ache a lot . I do experience the nausea and bloating after I eat; but more so after eating a high fiber meal. The high fiber introduces more gas into my digestive system which makes me nauseated and light headed. I had a endoscopic dilation in 2017 because my wrap was too tight and it did help to reduce my constipation. Since I got my wrap in 2000, I have been having so many digestive problems. I will be getting mine reversed this week. Will keep you posted. Have a blessed day.

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Profile picture for faithful55 @faithful55

Hi,
I'm sorry you are experiencing so much trouble with your wrap. I got my wrap in 2000 and yes I have been experiencing some of the same symptoms that you are having right now. After I got my wrap the symptoms weren't bad. My GI doctor would prescribe meds that would address the symptoms but not the root cause of the problem which they still have not defined. I had one endoscopic dilation in 2017 because the wrap had gotten too tight and was causing bloating, constipation, and nausea and other issues. The dilation worked for 7 months and then my symptoms returned. Because my system gets overwhelmed with gas, I changed my diet to remove certain vegetables and sweets that were adding to the bloating. I also did some research to find herbal remedies that address my specific symptoms so that I can have some kind of relief until I get the wrap undone. I found one, DGL (licorice) that helps with bloating. I take citrucel and miralax for constipation. I wish you the best in resolving your problem. Have a blessed day.

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I’m sorry to hear that so many people have had trouble with this procedure. My biggest fear right now is that someone is going to think I am crazy. My barium swallow test came back normal so Monday I have an endoscopy scheduled. I’m nervous because it will either show something which is scary. Or it won’t show anything definitive and I then I go back to just wondering what is wrong with my stomach. Meal time is difficult because I feel sick within a short time after eating. More surgery scares me but I have a feeling at some point I’ll be at that decision point

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Profile picture for faithful55 @faithful55

I am posting my story to see if anyone else is experiencing the same symptoms that I have been experiencing after having a Nissen fundoplication.
In 1998, I had a hysterectomy. Three weeks after I started to vomit after eating a meal and had terrible migraines. I went to my doctor and he ordered blood work and I was told that I had h-pylori bacteria. I was put on high antibiotics. After taking the antibiotics the migraines stopped but the heaving continued off and on. In 1999, I had my gallbladder removed because I had a functional test that revealed that my gallbladder was not operating correctly and probably was the source of my vomiting. About six months after the gallbladder surgery, the vomiting returned. I went back to my doctor and he referred me to a surgeon who told me that I had classic GERD. In 2000, I had a Nissen fundoplication. Since then, I still would experience nausea but could not heave because of the wrap. During those times of nausea, I would have to ice myself down to reduce the dry heaves until my brain would tell my system to try the other way. I also was having an acidic stomach. To minimize the acid in my stomach, I was but on Zantac.
As the years progressed I have had episodes of extreme bloating and constipation, nausea, mind fogginess, acid reflux, extreme hot flashes, and rashes. Over almost 2 decades, I have seen numerous gastroenterologists and alternative medicine doctors. I have been put on acid reducers and medications to help with the constipation. One gastroenterologist even diagnosed me with gastroparesis. In 2017, I had a 4 hour stomach emptying test that revealed that I did not have gastroparesis. But from 2013 to 2017, I changed my diet to adjust my eating based on the diagnosis.
In 2016, I started getting colonics because I was experiencing constipation, fogginess, extreme hot flashes, fatigue, and weight gain. I stopped getting the colonics after a year. It was too much of a strain on my system.
In 2017, I had an endoscopic dilation. I had been experiencing constant bloating and extreme hot flashes. To me, my hot flashes were coming from the laboring of my digestive system to digest the food and also when I would get stressed. After the dilation, I had to cut out a lot of foods that were high fiber and gaseous. I used to be able to drink tea, but tea gases my system. I cannot eat chips or anything that has a high salt content because at times it upsets my stomach and makes my face feel like it is crawling and I would break out. I eat small meals these days because it takes too long for my system to digest a meal. I have to take MiraLax and Citrucel every night to keep my system running. I try to monitor my weight to make sure that I am not putting on weight because for me it signals that the food is not passing and is sitting in my colon.
As I am getting older, the Nissen is causing more problems for me. I saw my most recent Gastro doctor last week and told him that I wanted to get the wrap undone. I would appreciate it if anyone has had a similar experience as I have and share with me what they have done or are doing to remedy their situation.

Jump to this post

Hi @gabigirl26 @lceresi @uvamomb2007 @faithful55 @jackiem95,

You may notice that I combined your discussions with this existing one as I thought it would be beneficial for you to meet each other and share your experiences and insights.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

I’d also encourage you to view these incredibly informative conversations on Connect where @btowngal @pdilly @marychapman @mmax @carolynlivingjaks @kozlo52 @islandgirl61 @tngirl630 @sickvick and many others are discussing their experiences with this procedure:
– Nissen Fundoplication reversal https://connect.mayoclinic.org/discussion/nissen-fundoplication-reversal/
– Anyone else had a Nissen slip? (it's been 7 years) https://connect.mayoclinic.org/discussion/anyone-else-had-a-nissen-slip-its-been-7-years/
– Linx procedure https://connect.mayoclinic.org/discussion/linz-procedure/

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Profile picture for gabigirl26 @gabigirl26

Hello- I have had to have 3 Nissen Fundoplication surgeries to fix hiatal hernia. The first two came undone and were too loose. The third one, they also did a combo Wedge Gastroplasty (took a piece of my stomach to use to make my esophogus longer) and did the Nissen redo. I have been having a lot of problems with sharp upper abdominal pain especially when eating, nasuea, bloating. The pain gets so bad sometimes that I can't walk or stand up straight. I am on Zofran as needed for Nausea and now using Protonix (again) in the morning. I have been alternating on Omeprazole and Protonix every so often because it seems I end up getting used to or building a tolerance to these meds. The pain has been increasingly worse the past month. Had a barium swallow and showed no reflux or hiatal hernia. I go next week for an endoscopy. Can a Nissen be too tight? Is that something you would see on the barium test or not? I am nervous I may need another surgery again and I am just trying to see if anyone else out there has had this issue?

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From the comments on this forum it sounds like almost no one has had much success with this procedure. But It must be quite common. Am wondering why.

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Profile picture for faithann64 @faithann64

ken82 , I'm 55 year old male and had surgery 6 months ago and having allot same problems as you . My doctor says I have dumping syndrome ? Going back surgeon in a week , ugh. it is a life changing event ? Don't think I'll ever be normal again ? I definitely understand what your going thru ! Good luck to you .

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Hi Faithann64,
I am so sorry to hear that you are going through this nightmare. You have basically the same symptoms I had with the exception of constipation. Even though I had my wrap undone this year, I still suffer with constipation. My surgeon has put me on linzess, but it is not working too well. I'm fighting with my insurance company to get the highest dosage to see if it will give me some relief. I have hope that some day there will be a resolution for me, but until then, I'll continue to pray. I'll pray for you too.

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