Hi! I too had a slipped Nissen... within two years. I then had a Toupet Fundoplication... it, too, is breaking down... 3 years later. I cannot eat more than a mouse, have dumping syndrome and dysohagia (swallowing troubles), plus a bad abdominal mesh from 2000 (still in me). I am also filled with adhesions. I have regretted both surgeries, but no other option. Weighed 210 in 2013... now down to 115. Every meal is a struggle. I wish you much luck and success. I will be watching this to see what advice you get. I never got much response from mine. Starving to find out!!

Hi @leannesalinas,

You may notice that I moved your discussion and combined it with this discussion on Nissen Fundoplication started by @btowngal. I noticed that @btowngal shared her insights with you (thank you!), and I thought it would be beneficial for you to be introduced to some other members as well.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

I encourage you to view these other conversations on Connect, where many others – @robatk17 @miserablenissen @ed_85 @kozlo52 @nirolk @link1030 –
have also shared their frustrations with this procedure:
– Reversal of a fundoplication https://connect.mayoclinic.org/discussion/reversal-of-a-fundoplication/
– Failed Nissen w/gastroparesis & possible MALs https://connect.mayoclinic.org/discussion/failed-nissen-wgastroparesis-possible-mals/

@leannesalinas, have you been able to resolve some of your symptoms?

@marychapman @sickvick @fourof5zs @leannesalinas @pdilly

Hello All,

I wanted to post an update since I saw the surgeon a couple weeks ago. He said that after reviewing the CT scan, the Nissen wrap itself hasn't moved, but a small portion of the stomach has been pulled up through it. While the only way to fix this is through a second surgery, he told me that currently there is no danger to leaving everything as is. The risk of complications goes up from 1-3% with my first surgery to 5-10% with a second. Since they would not know why the stomach was pulled up (shortened esophagus from scarring or just a result of the small hernia), the surgery could end up even more complicated if he would have to remove part of the stomach to lengthen the esophagus. There is a greater chance of bleeding with the liver or spleen. He said that while liver bleeding is very easy to stop, the spleen is a very tender organ and it can be more difficult to stop bleeding, which can potentially lead to it needing to be removed. He also said that the chance of long-term side effects such as difficulty swallowing, inability to burp, and more limited diet could result. Finally, the recovery would be longer than the first surgery. He told me that I would have to weigh the amount of discomfort I am in right now with the potential risks.

I have opted to not have another surgery at this time. While I still have some spasms and heartburn, I consider my current symptoms very manageable. Should the hernia get bigger causing more of the stomach to move up or the symptoms become significantly worse, my surgeon said that he will always be there and we can schedule surgery whenever I want to.

I hope that this helps some of you.

Best,
Sharlene

I'm sorry for what you are going through, I had a Nissen a couple months over 4 years ago in Iowa.. It went very wrong in that some nerves that help the stomach pulse to get the food flowing were injured.... Mayo Rochester diagnosed that I had post operative gastropaneisis...as really slow stomach.. I had lost 50 pounds from the not being able to eat much and keep it down.. Only when I went to Mayo did they figure out what had happened.. the can not fix it but they gave me a way to cope.. I have been to Mayo for several different problems... Trust their GI Dept. It's different than any other clinic I have ever been to.

First I want to say that when I like your post what I mean is that I like that you posted it. I certainly don’t like what’s going on to all of you people with such pain. I’m so sorry for each and every one of you.
My Nissen fundiplication has come completely undone according to the surgeon who did the ablation on my Barrett’s esophagus on July 31, 2019. He was not able to complete my fourth ablation because of food gushing up he said from my stomach into my esophagus. (I’ve had lots of reflux in the last several months so I wasn’t surprised. No heartburn pain though. I take 60mg of prevacid twice a day so it apparently completely gets rid of any acid production in my stomach!)

He wants me to have another Nissen before my next ablation. The giant hernia in my esophagus is what led to my first Nissen in 2016 — or 2015? The giant hernia is now back — a whole lot of my stomach is in my esophagus. We think it came undone because of the severe wretching and vomiting I have whenever I get stomach cramps. I get them once or twice a month — I’m assuming because I have Gastroparesis.

So my choice is to get another Nissen so they can complete ablations on the Barrett’s low grade dysplasia — or not. I’m pretty sure I’ll go ahead and have another Nissen because my concern of developing esophageal cancer outweighs my concern of a 2nd Nissen fundiplication developing complications

I just feel like I have to get all the information I can about my medical issues, find doctors I trust and have faith in, then prayerfully make my own decision as to the best path to take.

Easy for me to say since the severity of my condition is so much less than the conditions y’all have described. I wish the best for you!

Hi so sorry to hear it slipped. Yes I did good luck finding someone to fix it or listen to you. The most painful thing to happen. Make sure they test or check for hiatal hernia. So you don’t have anymore problems. I have thirty plus years of dr say it’s all in my head. Do your homework find a gi and surgeon to help. Sadly no test that I know of wish someone would figure it out. Well wishes speedy recovery

@btowngal about 6 years ago I had a failed Nissen in Central Iowa.. I went to Mayo MN GI dept .. where they diagnosed post operative gastroparesis.. The Doctor said that my Nissen could not be taken down or corrected... they just gave me a way to cope..