Peripheral neuropathy, RLS and PLMD

With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.

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With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.

Jump to this post

With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.

Jump to this post

With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.

Jump to this post

With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.

Jump to this post

With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.

Jump to this post

With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.

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sure John, I'll add this to the RLS discussion. But would like all PN sufferers to see it too, as it might help with their pain. Perhaps people would like to read the reviews of the Icy Hot tens therapy, and other tens units, that are on Amazon. For me, buying the tens unit was really "impulse buying" and after I brought it home it sat in the drawer for a long while - then one day, out of desperation, I used it and that's when I became a believer! Yesterday I went to the Amazon site and couldn't believe the number of tens units they have! The Icy Hot is easy to use - there are 2 different models, one for back and hip, one for knees. It uses CR2032 battereis, and I have ordered more refill pads as the adhesive does wear out after a number of uses. It comes with good instructions and if you put it close to your spine it just does seem to interfere with some pain signals (or also, in my case, the constant movement with RLS or PLMD).

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