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Peripheral neuropathy, RLS and PLMD
Neuropathy | Last Active: May 9, 2023 | Replies (40)Comment receiving replies
With the true definition of Restless legs being the URGE to move the legs. No matter how hard I am trying to sleep the legs and feet are just not comfortable and I am trying to find "the spot" to rest them finally! It happens to me while in the car on trips and it happens just sitting with the family watching the tele. It seems the more desire to keep the legs still, the worse the URGE TO MOVE the legs becomes. Most of the time the only way to relieve the awful feeling of MUST MOVE THE LEGS is to get up and walk, walk, walk and walk some more around the house usually dragging myself because I am mostly asleep or angry because I had to miss time that I wanted to watch a show or play a game or we have even had to stop the car so I can get up and walk.. It causes sleep deprivation, it causes us to do silly things like sleeping with soap or wrapping legs in plastic - if it works and its not harmful, then go for it!!! As for the rest of us there are some really fast working prescription medicines that I have not found to interact with other meds. They have side effects that you need to watch for such as "some" swollen ankles with some and urge to gamble or be sexually active more so.. but I have yet to meet someone that is affected by the last warning... lol. I have been helping people deal with RLS and PLMD for a few years now. I follow and sometimes consult a great Do in southern CA that specializes in RLS. He is a blessing to all that have gone to see him. =) He does run a web sight to give the very best suggestions and he answers
questions. I gave you enough information to find him. I am not cured, there is no cure but a certain little pill saved me from this beast. Augmentation is
one word that everyone wants to learn about before starting the pills.. sometimes you need a holiday from the drugs and then I have to rely on heavy duty narcotic drugs for the night time - 4pm starting time. Its just for 2 months. You can also rotate several of the drugs that stop RLS.. that doesn't work well on me. For some, it works well. Learn that many of the drugs used to Stop the pain of neuropathy do actually cause RLS and when stopped, it goes away after a month or two. Many, many found this out. Lyrica, Gabapentin is NOT on the list as of today's date. Lyrica is sometimes tried as a med to stop RLS.
I am not a medical professional, I am not giving medical advice. I am only sharing my experience as an everyday person.
Replies to "With the true definition of Restless legs being the URGE to move the legs. No matter..."
@elmerfudd - thank you for the information. Through that I am able to find drs in Colorado that might be able to help. Those of us who suffer with this can empathize with you so well. Sometimes the drugs seem to work better than at other times, finding what triggers the problem is the worst! Also, my worst side effect of the drugs is dizziness, have found a 'walking stick' to be a necessity when I'm outside. Recently fell, concussion, stitches - should have been using the walking stick in the house!! Wish I could get away from the drugs, but when I sit down to relax there is NO WAY I would stop them!!!!
@elmerfudd -P.S. have you tried a tens unit?
Have you seen my post a while back on RLS> and using soap !!!!!!!! to stop them Unfortunately that doesn't work for everyone, I always thought the "CURE" was psychosymatic, but one night I woke up and my legs were all over the place. I wondered where the bar of soap I had under the bottom sheet went, (doesn't need to be near your legs!) but it had fallen off the top of the mattress and was on the side of the mattress. When I put it back, all was fine again. Seems that the only bar of soap the does NOT work is Dial.! @gailffaith.
I try Hyland's Restful Legs just about every night - along with the prescription meds. Thanks...
Hmmm - I'll give that a try too!!
OK - tried the bar of soap last night and .... SLEPT. ALL. NIGHT. coincidence????
barbarn….SO glad it works for you. When I works, it WORKS!!!!!! What brand of bar soap did you use? As I may have mentioned, some find that when some do work, that DIAL won't. Make a note what brand you have, as when the soap wears down, YEARS from now (literally) !!!!!!!!!, you may forget. I started with one bar back in maybe the 1970's and I still have more than half of it left. And if someone does you the favor of making your bed, make sure they know about the soap and don't throw it out, thinking you are some nut! gailfaith.
barbarn, I see I misprintt in the first line, Sorry. It should read :"When it works, it WORKS." > galfaith here again.
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Have you tried Hyland's Restless leg , a little pill you can get in the Health dept. of stores. I used to have RLS pretty bad and it helped so I could sleep