← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@geniecm

Blood work scheduled for 12/3... Meanwhile I am miserable with both GCA symptoms and Prednisone side effects. Headache, temple pain, jaw pain, teeth sensitivity, fatigue, blurred vision, irritability, trouble thinking, speaking and walking. Trouble sleeping, thin skin, bruise easily and bleed profusely..fun, fun! plus my tongue feels like it has wiped a dirty floor. Down to 30 mgs from 50 mgs (8/26/19).

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Replies to "Blood work scheduled for 12/3... Meanwhile I am miserable with both GCA symptoms and Prednisone side..."

As they say - I feel your pain. The Prednisone side effects are awful but if you are at 30mg you should be close to the point where they become tolerable. When I checked into this forum I was miserable and @tinkerbell told me I should be able to sleep again when I got to 20mg. She was right. Even at 25mg I experienced a big quality of life improvement. So maybe on 12/3 you will be able to drop it a little and start feeling better.
I had all the symptoms you mention but my headaches and jaw pain went away when I started on 60mg. My ESR was 91 when this all started in late April. I'm now at 12.5mg and I'm going to 10mg on Dec 1st with blood tests scheduled in mid December.
That probably doesn't help much but I just wanted to encourage you to hang in there because it does get better.

So sorry it is really aggravating ! You can do this , so glad you are on this post. It s been helpful and really hope it helps make your pain a little easier .

@geniecm How did your blood work come out? And I’m sorry, I think we forgot to welcome you to Connect. We’re a community of people world-wide who share information and support about our health journeys (but we’re not doctors). What you are describing sounds so like me. I was diagnosed with an autoimmune disease (finally) and ended up in a rehab center for a month followed by weeks of physical and occupational therapy. All should get better as you taper off the prednisone. I’m glad you found Connect and have made some connections!