← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@654321

I have had it for about 5 years . It went into remission and came back about two years ago.
I’m on 7 mg of predizone daily. Feel so sorry for myself by trying to muddle through. It is good to talk to others who have this strange and odd disease .
Initially I was on 40 mg of predizone and tapered down. Can t seem to get any lower than 7 this time.

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Replies to "I have had it for about 5 years . It went into remission and came back..."

I HAD TEMPORARY BLINDNESS IN ONE EYE AND JAW PAIN BUT AFTER 2 days in hosp. I WAS TOLD NOT GCA. TWO MONTHS LATER after a biopsy in another hosp. Told I have GCA. Started 60 mg. Of prednasone and also methotrexate . One and one half years later down to 3 mg. Then my ESR and c reactive protein tests started going up so Now 6 months later, I am still on 5mg prednisone. I HAVE NEVER HAD much pain, but worry about my vision. It is a struggle. Good to talk to others. Feel not so alone.