← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@tinkerbell

@charann2000 - I see my optometrist every 6 months since the GCA started. She does a great exam and has the equipment to do more than the Neurologist was able to do. My optometrist told me that she has diagnosed people with GCA. It may make sense to schedule an appointment with your eye doctor. I know how frustrated you are since I went through the same thing. You get to the point that you don’t know where to turn next. We are lucky that we live 2 hours from Mayo and were able to go through their emergency room. I wish there was something I could do for you.

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Replies to "@charann2000 - I see my optometrist every 6 months since the GCA started. She does a..."

@charann2000 - Hi - I have floaters that started a few years ago. They don’t seem to be related to my GCA. I sure hope they can figure this out. I have not had any issues with my eyes since being on Prednisone or other organs. I didn’t have any problems with the biopsy site until I got down to 20 mg. I then noticed numbness from the biopsy site to the area out from my eye. There was also some swelling. Since getting to 10 mg. on the taper the swelling has gone away but the numbness is still there. It does not bother me and I just notice it when I touch that area. You will have to sign a waiver and they give you a list of things that can happen. Some very scary. The night of the biopsy I had a lot of pain. They had given me a prescription for Tylenol with codeine and I used it. I was surprised at the amount of pain. I just had a local and the pain came as the numbing agent stopped working. Mayo had a plastic surgeon do mine. The cut was made in the hair so there isn’t anything you can see. I would ask the ENT to do another Sed Rate.
I am going to Mayo on Monday to have my ACTH Stimulation test done on Tuesday. I asked the Neurologist if they would do another Sed Rate just to make sure I am okay to have the test. I am at 5 mg of Prednisone now and just want to make sure my Sed Rate has not increased. I was 38 when I was diagnosed, 4 mm/1 hr 3 months later, then 2 mm/1hr after another 3 months and 7 mm/1hr the last two times. I have no idea what is normal for me when not on Prednisone. Keep me posted. Thanks and Good Luck