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Hello! I was diagnosed with ES after a 9 year hunt that lead me to more specialists than I can count. I’m reading through these posts and it seems that most people have not pursued surgery. I just wanted to offer that I had a styloidectomy in Aug 2020 and would be happy to answer questions for anyone who is looking for information. Please note that I had the vascular form of ES, meaning my jugular was impinged. My main symptom was intercranial hypertension which is different than the more typical form of ES and it’s symptoms (however it’s the same surgery regardless of impingement). I also struggled with neurological issues, face numbness, vision changes, dizziness, neck pain, daily headaches, migraines, etc. I’m here if anyone has questions!
Replies to "Hello! I was diagnosed with ES after a 9 year hunt that lead me to more..."
Thank you for this offer. Did surgery help with all these symptoms? I am in Canada and unable to get surgery here. It is something almost no ENTs have familiarity where I live. Also - what were you symptoms of vascular ES with the jugular vein? How did they determine the JV was compressed?
Hi. Just found out I have ES. after 50 yrs of TMJ diagnosis. Just joined Mayo connect and totally confused. Why is there no information about Mayo doctors and ES. Haven't seen any mention of Mayo docs for neck pain, ear pain and vision problems due to ES. or Mayo doctors for anything. Really confusing what Mayo has to do with this site. Sorry. Also most ES info is from 2018..... confused. Thank you.
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@abbyco Welcome to Mayo Clinic Connect, a place to give and get support. It sounds like you have a lot of information to share.
It took 9 years for you to get the correct diagnosis of Eagle Syndrome. You were able to improve your symptoms through surgery and you are happy to answer any questions.
It sounds like @sethm007 is looking for a surgeon. May I ask how you searched and found the doctor that did your successful surgery?