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Replies to "After two years I finally figured out I likely have eagle syndrome. I’ve had tremendous jaw..."
Ear, Nose & Throat (ENT) | Last Active: Dec 6 8:32am | Replies (308)
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After two years I finally figured out I likely have eagle syndrome. I’ve had tremendous jaw pain and everyone thought it was tmj. But after injections mris and CT’s, it appears to be Eagle. My styloids are close to 5.5 inches long. The ent in Dallas wants to cut my neck and that makes me nervous. Know any good specialists that do robotic surgery? Is that what I want? Does mayo do this? Thank you.
Seth
Replies to "After two years I finally figured out I likely have eagle syndrome. I’ve had tremendous jaw..."
@sethm007 Welcome to Mayo Clinic Connect, a place to give and get support.
After two years you were finally diagnosed with Eagle Syndrome. You are wondering if the surgery your specialist wants is the route for you to take and if they are the best person to do it.
I'm wondering if you have considered getting a second opinion?
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Your case sounds similar to mine. I was lucky that after two years I was referred to Dr Thorpe at UNC as my neurologist thought I had a CSF Leak. I was already scheduled to go to the CSF leak center at Duke and did testing. Immediately Dr. Thorpe referred me to Dr. Trevor Hackman at UNC. After doing a laryngoscopy he knew immediately what was wrong with me. He went back and looked at all my CT scans and couldn't believe all the doctors at duke missed it. Anyway he is a head neck surgeon(this is what type doctor you need to do ES surgeries. He is the only doctor I found that is trained on the Davinici Robot. I had both my styloids removed as well as my right thyroid all at the same time.
I have sent many patients to him to do revisions etc. Not all patients are candidates for the robot. I am not sure why. I will say of all the doctors i've ever met etc he is the best I've ever met.
He is trained in so many areas. He sees a lot of cancer patients, reconstruction of cleft pallets and vascular.
There is an Eagles support group that has a list of doctors trained on the Davinci. The have a list of all doctors trained/experienced in Eagles Syndrome. Compared to the experiences I read about I had a much easier time. They do have to cut about five holes in your mouth but the mouth heels fast and easily. It is less invasive and less risky.
I read up on Dr. Hackman and he has all sorts of awards but the one I was most impressed with is the one where other doctors vote on who they would choose to do surgery on themselves. He has won it several times.
Maybe you could call the Mayo clinic and see if anyone is using the Davinci robot. It takes a whole team trained in this.
Best of Luck,
Adriene Huffman