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Eagle Syndrome
My son was diagnosed with Eagle Syndrome. It took years of him complaining to Dentists and Doctors before it was diagnosed. Finally a Dr referred him too the Cleveland Clinic. They were able to diagnose it, but didn't have a Dr on staff that could offer any advice. Being that Eagle syndrome is so rare less than 4% percent have this condition and of that 0.16% show symptoms.
We found a couple of Dr's who have treated the condition. But they claim the surgery is horrible they found it creates more issues. That to hold off as long as a person can.
It is very painful at times for my son. He said right now, he can feel the Styloid pressing on his Hyloid bone.
Does Mayo Clinic have any studies or Dr's that deal with Eagles Syndrome?
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could you please tell me who you doctor was and what state they are in ?
Hello,
My name is Lisa and I just happened upon this website searching for information on Eagles.
I was meant to see this post ! I too have Bilateral calcification and have experienced very similar symptoms, I recently saw Dr Samji in SanJose CA (4hr drive from my home) I paid out of pocket for a consultation and am battling my insurance company.
Dr Samji diagnosed me with ES officially stating that my styloid is the longest and thickest he has seen.
Boy I feel special! Haha
He said that the left would be removed first than the right 3 months later. I’m very nervous about the surgery which is scheduled this November.
I found his name by chance on anES support group I chanced upon one day and liked that he had done 400 styloidectomys.
Seeing his name pop up again has made me feel so much better.
PS
Any input on Dr Samji or other Doctors who perform this surgery?
Just diagnosed. My styloids are very long and terrified of surgery. Hear that many people are worse off from surgery. Heard endoscopic robotic surgery is best way to go. Anybody have this weird problem
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2 ReactionsHi @lisayork and @eastmas1, welcome to Mayo Clinic Connect. Both of you have the distinction of having long styloids.
@eastmas1. you'll notice that I moved your message to this existing discussion about Eagle Syndrome. I did this so you can connect with new member Lisa, as well as members, @travelgirl @hoping @mindyf @vbammer @meliss @de9g @brooklyngirl @elimpert96 @alcorreia0123 @empy @christina61 and more. Click VIEW & REPLY in the email notification to scroll through past posts.
Lisa, will your surgery be done endoscopically?
Eastmas, has surgery been recommended for you?
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2 ReactionsI have a question. This weekend i fell down the stairs and they did a ct scan on my head and neck to figure out why my shoulder hurt etc. Well reading my portal and my report it said this (picture with this comment) I of course googled what thay meant and it came up Eagles Syndrome. What exactly is this. How do you get it. What do I do to get it fixed.
Surgery is the only way. Most people don’t have symptoms. If you didn’t have an issue before the fall then leave it be.
Ive had problems for a long time now. Very long time. What kind of doctor do I go see and thanks for replying
@melissaeckert2018-if I can give you any guidance or advice. I recommend not over analyzing your scan and googling things from it. You had a fall, which most likely caused more attention to that area. Allow your body to recover from the fall. Where your mind goes, is where your energy will flow. Had you not read your own scan or searched for meanings, you would be more on the road to healing. If you keep pressing doctors for “abnormalities” they will most likely find one, if they are a surgeon. The body is complex. Things are never perfectly symmetrical. But you don’t really know that until you have a scan done. Allow yourself to heal first from your fall. Hope this helps a little bit.
i have dysphagia that started in 2015 with problem with swallowing then each year it progressed and got under a doctors care in 2017 because i started having excess saliva also the saliva started to get worse each year. by 2019 being under doctors care i was given Botox injections on my face to the salivary gland and got five injections with-in 5 months. after the 5 injections my excess saliva stayed the same. besides the excess saliva i developed a problem speaking that started when my excess saliva started and started to write things down instead of trying to speak, the problem persist today with both excess saliva and speaking but now the excess saliva is so bad it pours out of my mouth and have to keep a cloth or paper towel close by to cover and to wipe the saliva but if i do not then the saliva falls out of my mouth. When swallowing food the food has to be very small pieces or it will get stuck in my throat and i cant swallow it and i start to choke gasping and cough out the piece of food, so i only eat small pieces of food cutting any food into small pieces but i eat mainly soft foods as oatmeal and vegetables and soft doughnuts and ice cream and only canned sardines and milk. the main thing is I only soft foods. the doctor prescribed Cyclamate to control the saliva in 2020 but it did not work. in October 2020 my Esophagus was checked that shows my Esophagus was opened all the way so the doctor sent me the ENT doctors which I have a appointment for December 20, 20020 My excess saliva being so bad i found out a procedure called Sialendoscopy can be used instead of removing the Salivary Gland . i have been trying to find a doctor that does that procedure close by in Jersey City where I live. So far i have found only Doctors too far away, Has anyone has had this type of problem with a very bad of excess saliva and has had treatments for it, And also knows a Doctor close by in Jersey City who does the Endoscopic Sialendoscopy . Thank You Robert Cortazal
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3 Reactionsi do not see any reply to my post.about Endoscopic Sialendoscopoy ..i will check back ...Thank You...Robert Cortazal