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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: Dec 6 8:32am | Replies (308)

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@hopeful33250

Hello @timpendergast and welcome to Connect. I see that you just recently joined Connect. I found your discussion of diagnosis about Eagle's Syndrome to be very interesting. The part of your post that piqued my interest was the paralyzed vocal cord.

I also have an idiopathic paralyzed left vocal cord (had surgery in 2014 at Cleveland Clinic to fill in the paralyzed cord so that it would close up with the right cord). No ocular migraines, however, I do have blurry vision and fullness/pain in the left ear with tinnitus. Recently after a nuclear test for the parathyroid an "Asymmetric enlargement of the left common jugular vein" was found. To me, this seems like a lot of left-sided coincidences. I would be interested in knowing more about your research.

Are you familiar with any of these other symptoms being related to Eagle's Syndrome?

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Replies to "Hello @timpendergast and welcome to Connect. I see that you just recently joined Connect. I found..."

Thank you for the reply/ coment/ question. It seems most of the list of symtom's I've found, comes from sources like Wikapedea, and studies on Eagle Syndrome from medical personal. Unfortunately those sources do not go deeply into case studys, the personal stories and what makes our own individual experiences differant, and at the same time collectively simular.
I've found I get the most out of the personal stories from other forums, like facebook groups, and others you can find burried in google searches, how I found this one. In these forums I've mostly attached relationships between my three particular primary rare malidys, Eagles, Ocular Migrains, and Vocal Chord paralysis. I've collected quite a surprising chorus of like symtomed individuals. As far as other symptoms I have not highlighted, since I do not particularly witness them and have not highlighted them, I have not seen others with the like.
I would highly suggest joining one of the many facebook groups that come up with a search for Eagle Syndrome facebook groups and ask there.

My personal goal is to seek out and involve medicle professionals in the discussion, which I'm not seeing much of. My question... where are they?