@kbailey I can relate to all of the waiting, it took me a year and a half to finally get my diagnosis and it came from the radiologist that reviewed my CT scan in the ER. This was after a dentist visit with xrays, oral surgeon with xrays and multiple family dr visits. Once I finally received my diagnosis, the ER doc referred me to ent. None of the ENT within the Fairview Hospital system were familiar with Eagles Syndrome and didn't know what to do with me. The Mayo clinic didn't treat it, so I called the U of M. Thank goodness a person that made appointments had remembered hearing of Eagles and made some calls. They directed me to Dr. Ondrey at the U of M (head and neck surgeon). He is the only Dr. in MN that has operated on this to my knowledge. I had to wait over a month to get into him, so I asked the local ENT to help me with something until that appointment. They didn't know what to do, so they started me on Prednisone thinking that reducing the inflammation would at least help, they also gave me muscle relaxers. It lessened a small amount of the symptoms. I would maybe call one of the larger hospital systems and inquire with ENT or Head/Neck surgeon. I wasn't ever pointed in the direction of Neurology. I have ready many posts where people have had to travel out of their state to see specialist. There are a few in Philadelphia and one in California (San Jose I believe - this dr will review your records without having to go there for $500 when I had inquired before finding my surgeon). My case would not have gotten any better without surgery, I basically had a necklace of bone (this is how Dr. Ondrey described it to my non medical husband). My styloids were elongated and the connecting ligaments were completely calcified down to the hyoid bone on both sides). My sugery was on May 10th, 2019. The recovery was a bit tough, but after 3 weeks I was able to go back to work. There were a few nerve issues for the next few months that affected my speech (they had me see a speech therapist that gave me some exercises), but I am 100% now. We are hoping that the right side will not cause any issues so I don't have to do another surgery. The group Bens Friends had a wealth of information and much encouragement for those who have gone through this and are at the point that you are. I am so sorry for your pain and frustration. I hope that you can maybe find a head/neck surgeon that is willing to see you before you can get into the Neurologist. Also, some surgeries are done orally (tonsils are removed if they are still there - my surgeon started doing this procedure, but now only does his surgeries externally. I do have a scar on the side of my neck, but it is well worth being free of symptoms).