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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: Mar 11 6:49pm | Replies (293)

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@lisalucier

Sounds painful, @holemania. Welcome to Mayo Clinic Connect. Thanks for sharing the images.

I'd like you to meet @travelgirl @johealy31 @zebraclaire97 @paulaturner @eaglegirl1 and others. Hoping they can be helpful to you as you try and get a more definitive diagnosis.

I'm presuming from what you said, holemania, that you think ES is very likely your diagnosis?

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Replies to "Sounds painful, @holemania. Welcome to Mayo Clinic Connect. Thanks for sharing the images. I'd like you..."

Lisa, thanks for welcome. Yes, just based on my "weird" symptoms...that's what i believe right now.
I also have terrible tinnitus/ringing in both ears 24/7 - when i clamp my teeth together, the tinnitus tone changes to a different frequency.
I've explored all the options i can think of...I had all amalgam fillings removed (thought i might have heavy metal/mercury poisoning).
We've had EMF measurements done at house and turned off/unplugged all wireless devices.
I've had ultrasound, CT & MRI images performed but ENT dismissed my inquiry and thought that the tender lump and adjacent nerve pain and tender engorged feeling in my neck, jaw, face and temple could be related to a styloid process issue.
I wish I knew, but I feel like the epi-center of all my issues are right in that area on the right side only behind my jaw/under the ear lobe.
Thanks,
Dave