I have had feeling of very tender "lump" on right-hand side right below my ear/behind jaw for 2-3 years now. The pain and "pinched nerve" feeling/engorged feeling radiates through-out the right side of my face, up to my head/temple and down to my shoulder. I also have "zaps" down through my chest sometimes. I have had ENT doctors order ultrasound, CT & MRI, but never a diagnosis of ES.
I attached pics of my CT that I took snapshots of my images but was not able to window/level manually or measure the styloid process, but I can see that my RH styloid process is longer than my LH side. It doesn't look as long as other example ES images I have seen, but I definitely think it is impacting nerves and possibly vascular on my RH side. I am in Tampa, FL area and also in the VA Healthcare system. I have a VA ENT appt. coming up in December, but not sure I will make much headway in getting an accurate diagnosis...tired of being told it's "in my head" and try gabapentin, etc.!!!