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Hi, @linda21 - I also wanted to welcome you to Mayo Clinic Connect and find out what you may have learned from the CT scan?
@clara01 - do you also have a diagnosis of Eagle Syndrome? What symptoms have you been experiencing? It would be great if @hoping could return and share more about where the surgery took place.
@de9g - you'd mentioned previously you were feeling stuck due to a disagreement on diagnosis. Has anything changed at all with that situation?
@jackiejean - How are you doing? Did you end up having surgery?
Replies to "Hi, @linda21 - I also wanted to welcome you to Mayo Clinic Connect and find out..."
I'm still a little stuck, but have a call in to doctor in Louisiana and hope he will accept me as his patient. Spine Team says definitely have an issue with stylohyoid.ligament and that's ENT territory. Meds have not worked except the meds that make me sleepy so I only take at night. Wake up with same pain. Hopefully, nurse calls back soon.
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Hi Lisa. The CT scan showed that I have bilateral stylohyoid ligament calcification. My right side (which is much more bothersome than the left) is actually 1.1cm longer than the left side (1.6cm vs 2.7cm).
I’m looking to get a consult with Dr. Samji in San José, CA to get the surgery as my symptoms hace gotten progressively worse. They are: pain in throat, pain inside ear, pain behind ear and down neck and back, pain in jaw that is also extending up to my face/eye socket. All is this on the right side.
Question: does anyone know if the surgery can be done on both sides on the same day?
Keep pushing for the diagnosis, fellow ES crew! ❤️