Did you have your CT yet? I was really surprised that after the radiologist diagnosed me from the CT, that I couldn't fine 1 ENT specialist that has any experience with Eagles. They told me that they have only seen it in medical books, but have never met anyone in person. I was very thankful to have found Dr. Ondrey at the U of M. He is the only surgeon in MN that I am aware of that has treated Eagles. My best to you!

Hi, @linda21 - I also wanted to welcome you to Mayo Clinic Connect and find out what you may have learned from the CT scan?

@clara01 - do you also have a diagnosis of Eagle Syndrome? What symptoms have you been experiencing? It would be great if @hoping could return and share more about where the surgery took place.

@de9g - you'd mentioned previously you were feeling stuck due to a disagreement on diagnosis. Has anything changed at all with that situation?

@jackiejean - How are you doing? Did you end up having surgery?

@linda21, I had to diagnose myself after 3 years of torture because the medical community gaslit me. My newly licensed physical therapist performed the Spurling test wrong and with such force she fractured my styloid process. I just googled my symptoms and there it was. There was no reason why any of the specialists that I saw couldn't have googled my symptoms. Our state university hospital agreed with my diagnosis. I was going to have exterior neck surgery, because I know how horrific interior throat surgery can be around all those sensitive nerves, but the female surgeon that had actually performed these surgeries moved out of state. That God I didn't have the surgery , I diagnosed my own blood clot correctly when everyone ignored the symptoms. This should be on every state board of medical imaging to look for. I believe every stats of people who have this condition is much higher, they are just not being properly diagnosed.