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I’m also being told that.. it’s been 6 months of Doctors telling me I’m ‘the picture of perfect health’. Finally, last week, a new female ENT told me it MAY be Eagle’s Syndrome and I’m getting a CT scan on Monday.. I’m 99% sure I auto-diagnosed myself months ago but nobody would listen. Wishing you the best on your recovery!
Replies to "I’m also being told that.. it’s been 6 months of Doctors telling me I’m ‘the picture..."
Hi, @linda21 - I also wanted to welcome you to Mayo Clinic Connect and find out what you may have learned from the CT scan?
@clara01 - do you also have a diagnosis of Eagle Syndrome? What symptoms have you been experiencing? It would be great if @hoping could return and share more about where the surgery took place.
@de9g - you'd mentioned previously you were feeling stuck due to a disagreement on diagnosis. Has anything changed at all with that situation?
@jackiejean - How are you doing? Did you end up having surgery?
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Did you have your CT yet? I was really surprised that after the radiologist diagnosed me from the CT, that I couldn't fine 1 ENT specialist that has any experience with Eagles. They told me that they have only seen it in medical books, but have never met anyone in person. I was very thankful to have found Dr. Ondrey at the U of M. He is the only surgeon in MN that I am aware of that has treated Eagles. My best to you!