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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: 6 days ago | Replies (307)

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@theeaglehasland

I was referred to an ENT Dr. In my area by the neurosurgeon the VA sent me to using the community care provided by the VA. I saw the ENT for about two minutes. I was in the middle of telling him all my symptoms and he cuts me off saying, “None of the symptoms you are describing has anything to do with Eagle syndrome,” and before I can say anything he tells me he is going to call the neurosurgeon that referred me to him and he would call me the next day and abruptly walks out of the room before I can respond. The entire appointment he had a dismissive and irritated attitude. I waited months, and navigated the difficult VA system to get this appointment. He does not call me the next day, so I called his office and left message with receptionist. Finally two days later his receptionist calls me and tells me the doctor has referred me back to the neurosurgeon that referred me to him in the first place, and gives no reason why. Now I feel hope slipping away. Bilateral Elongated styloids are confirmed and according to every source available to me, all my symptoms do indicate Eagle Syndrome, but the ENT dismissed the possibility of ES. I am scheduled to see the same neurologist I saw before the ENT on Monday. Having only the VA for healthcare, and these two doctors sending me back and forth and dismissing my symptoms as being caused by ES has me worried that I will never find help and get stuck in the sub-standard VA system and forced to endure this pain and suffering for the rest of my life. My symptoms are severe and have taken over my life to the point that I am having trouble taking care of myself. Please, if someone knows how I can utilize VA healthcare through the community care (choice program) to see a doctor out of my state, that has experience with ES, and is willing to help me, the info just may salvage my life.

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Replies to "I was referred to an ENT Dr. In my area by the neurosurgeon the VA sent..."

Oh, that sounds terrible! Do you have CT scans with measurements of styloid process? If so, I wonder if you could get styloid measured again by someone else. If not, can you ask for a CT scan then radiologist will give measurements in report. If I think of anything that may give an idea I will post. Please keep trying for another styloid measurement.