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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: Mar 11 6:49pm | Replies (293)

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@alcorreia0123

That sounds like me. I also have eagles syndrome, but I was also recently diagnosed with psuedo tumor cerebri. Which was the cause for my pressure feeling when I got my headaches. It was also the reason why it seemed the more I moved around the worse it got. The psuedo tumor is also the same reason my heart rate always ran a little high. I was always 110-105 resting. I am down to 95 resting on average now since I was started on diamox. I haven't had a headache since the diamox either. Even with as long as my ES styloids are. I still feel my styloids in there poking, making my ears hurt. I think sometimes when you have the styloids you can have other things wrong and sometimes the symptoms overlap. I don't know a whole lot about the VA, but I do know that it sounds like you aren't being cared for the way you should. I had to go to another state to find answers because no one in my state knew what eagles syndrome even was without having to do a Google search. I wish you the best. Keep looking for answers and never settle for second best!

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Replies to "That sounds like me. I also have eagles syndrome, but I was also recently diagnosed with..."

Hi there - can you please share how you were diagnosed with pseudo tumor cerebri? Did you have any pulsating head pressure or dizziness with your headaches? I do have ES too but have been experiencing pulsating headaches when moving from sitting to standing or walking up stairs/hill, moving. Also some dizziness. The ENT is saying these are not ES-related. I do not want to do the ES surgery if it can be avoided. Thx!