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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: Dec 6 8:32am | Replies (308)

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@abby4paige

I am newly diagnosed by CT scan from an ER visit. Symptoms started a year ago , but constant for the past 6 weeks. After visits with family dr, dentist and oral surgeon they think it’s in my head. Well, turns out it is in my head, but in the form of bilateral elongated styloids and densely ossified styloid ligaments that extend all the way to the hyoid bone. The ER doc actually entered the room with his medical dictionary and said he has never seen this diagnosis before and suggested that I see an ent. After calling a few locations and being told that they will not see me, I have found 1 doc at the University of Minnesota that has treated this before. They are booked out a month, but am hopeful to see some relief in the future. Has anyone experienced trouble in getting surgery approved by insurance?

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Replies to "I am newly diagnosed by CT scan from an ER visit. Symptoms started a year ago..."

@abby4paige I am also in MN and about to lose my mind trying to find a dr that will help me! I think the problem is that so few dr's have a clue about ES so they tell us all it's in our head and we shld seek counseling or my favorite..... you just need physical therapy and reduce your stress! UGH!!!!! I recently had several medical professionals within the same office tell me that they don't believe in ES causing pain!!! And I needed to look into a more mind and body approach to heal myself!!! Tell that to the bone and calcification in my neck that keeps me up at 3:00 AM and is destroying my life!
Did you make it to your appt at the U of M? Curious to hear about your experience if you did and who you saw!